I have fibro, had to take Cipro

fibro and injection [2008-02-17]
Thanks for the reply. I am getting a T2 epidural tomorrow, very scared. Will try the ribrose. How much do you take? Thanks again.

Listen to this one about Cipro [2008-01-07]
I took Cipro off and on many years ago due to urinary tract infections and had no problem with it. The last time, and I do mean the last time, I took it was approximately 14 years ago. I believe it was the second day of dosing that I became extremely paranoid. I went to a local grocery store to buy groceries. I felt as if everyone was staring at me and talking about me. I paid for my groceries and the cashier gave me mychange, which I did not realize (for some odd reason). Now, I am not a confrontational person at all. I began arguing with the cashier that she did not give me my change back, all the while holding the money in my hand. I caused such a scene. I knew the manager as he went to our church. He came over and asked me what was wrong. I told him the cashier had not given me my change and that she was arguing with me that she had. He reached over and took the change out of my hand and gave it to me. Needless to say, I did not go to that grocery store for a while, as I was so embarrassed. I went home and called the emergency room as I had a feeling it was the Cipro, whatelse could it have been. The nurse told me paranoia can be a side effect. It is now on my chartthat I am allergic to Cipro.It was just horrible.

I have fibro, had to take Cipro [2008-01-07]
here lately for urinary tract infection and my fibro was under some control, then terrible flare again. I now am thinking after reading this owed to Cipro. I definitely will be more aware in the future about any medicines such as this.

Cipro and fibro [2008-01-07]
I notified my local fibromyalgia coalition here and they are writing an article about what these drugs do, i.e. causing and worsening fibro. Anyone affected by these drugs needs to notify the FDA. I did and they sent me a letter saying they would investigate it. Some people have sued for the side effects of Levaquin. I will never take any fluoros again. My friend was completely shut down from a month of these drugs with no reversal.

Mary, never knew that about Cipro. I took it for UTI and WOW, I had [2008-01-06]
point of unbearable. My doc said he had never heard of such a thing and I told him that I had fibromyalgia and he said that it must be a flare up due to the UTI. Bulloney! I now see an MD who is ALSO an NMD, so I have the best of both worlds and my insurance covers my visits and meds. As well, he sees his patients at the hospital if they have to be admitted.

Cipro [2008-01-06]
Hi, Here is that website on victim stories from fluoroquinolones. Unbelievable but true. http://fqframes.org/fqframes/index.htm

Anyone with fibro every taken Depo Provera? [2007-11-29]
??

fibro diet [2007-11-07]
Hi, Do all of you avoid tomatoes and potatoes? Heard they flare us yet I love them both. Thanks.

maybe a new breakthrough for fibro [2007-11-07]
Hi, Researchers are doing an enzyme study to see which enzyme breaks through the phosphate pool in fibro as our phosphate is stuck in the mucus pool and does not join with our calcium. This is what causes our pain. Let's pray they figure this out soon. If anyone can find any info about this, please Email me. Thanks.

fluoroquinolones and fibro [2007-11-05]
I think I posted on this before but my fibro got much worse after 5 days of Cipro, ankles, hips and arms now hurt and last dose of this poison was in April. Please avoid these antibiotics at all cost. They have killed some people and ruined others lives. The damage is done long after the antibiotic is stopped. I Emailed a doctor who took Levaquin and his Achilles tendon tore a year later. Being a doctor, he asked for a biopsy of the cartilage. It was very ratty. He will never prescribe these antibiotics again. None of my other doctors believe theseantibiotics cancause this much damage except the rheumatologist. The only detox is iodine or kelp.

good fibro website [2007-10-21]
http://www.emedicine.com/pmr/topic47.htm

severe head pain with fibro [2007-09-10]
OUCH, my head is killing me, like giant snakes trying to push out of my skull. The rheumatologist gave me Lyrica. Has anyone taken this? No one can figure out what is wrong with me. Have had C3-6 laminectomy (2002) and C2 nerve root ablation (2004). One doc says fibro, the other occipital neuralgia and the other degenerative disk disease and straight neck. I am about ready for the ER. Also having eczema on face. Just shoot me please!

fibro and testing [2007-08-23]
I went to a rheumatologist too and had 16 positive trigger points but he still could not definitively diagnose me with fibro. I am very disappointed. Just told me to take Lyrica.

The trigger point test for fibro [2007-08-20]
is the only one I know of. The docs can poke and prod all day long and it doesn't hurt, but make me walk around the block and I'm in agony. I should also mention that I used to be pretty active - went to the gym and stuff. I don't think there is a test for CFS and I'm a little afraid that is what the doctors are going to say I have since they can't find anything else. I am currently taking classes at the local college and am having a horrible time trying to get them to understand that I can't physically get to campus. With all the controversy about CFS, I'm afraid that would make the fight even harder. Thanks for the reply. :)

chest pain and fibro? [2007-06-08]
Have any of you had chest pain with fibro?

chest pain and fibro [2007-06-08]
Do you have chest pain with the fibro? Thanks.

Cipro-low thyroid [2007-06-03]
Gee, I wish I could sue the makers of these poisons. Now I have low thyroid which of course makes my muscles hurt worse. My skull is so tight I am about ready to pass out. Do your wrists and ankles hurt from your fibro? I am taking fish oil and guess I will try the nortriptyline. Need another MRI of my neck. I heard to avoid potatoes and night shade veges too. Gosh too much to do! I am going to order Super Green Foods to help and also change my vitamins. Was drinking a soy protein and that is making it worse. Am switching to GNC liquid vitamins and they also have liquid calcium and magnesium. Just shoot me!

Cipro now pins and needles [2007-06-02]
Now I have developed a neuropathy. Does fibro ever feel like pins and needles? I have very tight muscles too.

best multivitamin for fibro [2007-05-21]
Hi, What multivit do you gals take? I am looking for a good one. Thanks. Also my pain is escalating. Has anyone taken Ultram and does it work? My skull hurts 24/7 from the spasms, cannot wear glasses and am about ready to pass out. Could not take Baclofen and Vicodin does nothing. Thanks again.

Cipro and muscle pain [2007-05-18]
Here are some victim stories. These drugs make fibro worse. http://fqframes.org/fqframes/stories/area.htm

joint pain from fibro [2007-05-07]
Hi, Anyone have joint pain, like in your ankles, etc? What about upper body muscle weakness? I am still suffering the after effects of Cipro. Scared to death. Am going to doc this morning. Please pray for me. Thank you.

fibro alternative medicine [2007-04-26]
No I do not subscribe to this but they sent me their letter. There was a lady in there that reversed her fibro through diet but I am like you I am reluctant to believe all this. I agree with you totally I just thought someone might be interested in reading their magazine.

fibro flares/Baclofen [2007-04-26]
I read where potatoes cause a horrible flare. I hate that as I love potatoes and need to gain weight, only 5 and 103 pounds. I have fibro mostly in my skull, horrible 24/7 pain like rocks at the base of my skull that nothing helps. I had my occipital nerve cut 2 years ago from Occipital neuralgia and now have fibro. Has anyone tried Baclofen? They gave it to me but I have a bad stomach and am afraid to take it but at this pointI can't even drive. Thanks for any help.

I have quit work a little early today as fibro flairing [2007-04-26]
but today my arms, shoulders and hands really hurting. I sleep really good at night but when I start working, the boom comes down. BTW, the hubs told me today he had read somewhere that other medicines may play part in activating fibro. I took Synthroid but after losing most of my hair told physician not gonna take anymore and now on Armour (by the way, hair regrowing) but since being on Synthroid since the late 80s he was wondering if this were the cause - do any of you have any knowledge about the connection between medications and fibro or have you heard this?

fibro alternative medicine [2007-04-23]
I got my fibromyalgia coalition letter today. A doctorwrote and article and staets hegives his patients SAM-E, 5-HTP and malic acid. Has anyone out there tried these? Thanks.

OxyIR [2008-02-24]
Anybody take OxyIR for fibro and work okay on it? Thanks.

Fibromyalgia folks also and Mary, got the email about injection [2008-02-14]
I went back to pain clinic the first of this week- the other thoracic lasted for, ahh, 4 days- and the PA said well we should repeat and I said no, have turned down all hard medications before and now I said want Lortab for really bad pain - they monitor and I only take 1/2 tablet if needed. Now having said this, let me tell you what I found out about a health food store item called Ribose- I started taking nearly 2 weeks ago now and so far so good- read an article saying how much it had helped person's fibro- I gave it a chance. I will continue to stay on it as long as out of that excruciating pain.

I need some suggestions regarding fibromyalgia and exercise. [2008-01-16]
Well, I I bought the DVDs to do at home as well. My plan is to warm up, do the dance class, swim a couple of laps and get in the jacuzzi. My problem is that once I start exercising I throw into a fibro flare and I I can also get a massage in between every so often. Any feedback or suggestions are MOST welcome! Oh, my goal is to lose 50 lbs. Thank you!!!!!!!!!!

Maybe research this.. [2008-01-16]
I had muscle issues and read somewhere that after doing activity, you shouldn't immediately apply heat. I was always taking warm showers after activity because it felt good at the time, but read somewhere that you shouldn't do that - it somehow damages the muscle more. I'm not sure if that would apply in cases of fibro, but may be worth asking/researching. (only thought this because you mention the jacuzzi) I think the dance class is an excellent idea. Good luck!!

ongoing skull pain [2008-01-10]
Well had an EMG and showed C8 nerve pinched, horrible pain everywhere. Also said cold hands. HA. Are anyone elses hands always cold from fibro or whatever? I think I might have a brachioplexy, horrible pulling pain from skull down to shoulder. With fibro do your arms hurt around your elbows? These doctors are driving me crazy. Seeing another neurosurgeon Monday. Have C5-6 foraminal stenosis they wonIn 2002 had C3-6 laminotomy. I cannot go on like this, affecting my job. Cannot get ESI as too much scar tissue. Don't know what to do anymore.Any ideas?

Listen to this one about Cipro [2008-01-07]
I took Cipro off and on many years ago due to urinary tract infections and had no problem with it. The last time, and I do mean the last time, I took it was approximately 14 years ago. I believe it was the second day of dosing that I became extremely paranoid. I went to a local grocery store to buy groceries. I felt as if everyone was staring at me and talking about me. I paid for my groceries and the cashier gave me mychange, which I did not realize (for some odd reason). Now, I am not a confrontational person at all. I began arguing with the cashier that she did not give me my change back, all the while holding the money in my hand. I caused such a scene. I knew the manager as he went to our church. He came over and asked me what was wrong. I told him the cashier had not given me my change and that she was arguing with me that she had. He reached over and took the change out of my hand and gave it to me. Needless to say, I did not go to that grocery store for a while, as I was so embarrassed. I went home and called the emergency room as I had a feeling it was the Cipro, whatelse could it have been. The nurse told me paranoia can be a side effect. It is now on my chartthat I am allergic to Cipro.It was just horrible.

I have fibro, had to take Cipro [2008-01-07]
here lately for urinary tract infection and my fibro was under some control, then terrible flare again. I now am thinking after reading this owed to Cipro. I definitely will be more aware in the future about any medicines such as this.

Cipro and fibro [2008-01-07]
I notified my local fibromyalgia coalition here and they are writing an article about what these drugs do, i.e. causing and worsening fibro. Anyone affected by these drugs needs to notify the FDA. I did and they sent me a letter saying they would investigate it. Some people have sued for the side effects of Levaquin. I will never take any fluoros again. My friend was completely shut down from a month of these drugs with no reversal.

numbness and tingling [2007-12-04]
Hi, any of you have numbness and tingling in your arms and legs from fibro. Thanks.

maybe a new breakthrough for fibro [2007-11-07]
Hi, Researchers are doing an enzyme study to see which enzyme breaks through the phosphate pool in fibro as our phosphate is stuck in the mucus pool and does not join with our calcium. This is what causes our pain. Let's pray they figure this out soon. If anyone can find any info about this, please Email me. Thanks.

fluoroquinolones and fibro [2007-11-05]
I think I posted on this before but my fibro got much worse after 5 days of Cipro, ankles, hips and arms now hurt and last dose of this poison was in April. Please avoid these antibiotics at all cost. They have killed some people and ruined others lives. The damage is done long after the antibiotic is stopped. I Emailed a doctor who took Levaquin and his Achilles tendon tore a year later. Being a doctor, he asked for a biopsy of the cartilage. It was very ratty. He will never prescribe these antibiotics again. None of my other doctors believe theseantibiotics cancause this much damage except the rheumatologist. The only detox is iodine or kelp.

See, I did not give myself that diagnosis [2007-11-03]
of fibro- I told the first pain clinic a rheumatologist, an M.D., had diagnosed me as that- I can only take their diagnosis, right? I asked my regular physician (one that I am not going back to) about 3-4 weeks ago COULD THIS BE costochondritis??? I went in as workin one Saturday and he came flying in- told me he only had time for 1 problem, which was the most severe - I chose the fibro and then had shingles also so had to turn around and make appointment with dermatologist. I told the first pain clinic make a diagnosis and just treat the pain. I am so sorry I ask could it be or what another physician told me it was- I never made the diagnosis of fibro- knew no one with it and never knew about it before being diagnosed by a licensed M.D. I could take my medical records from 1 place to the other but they have no time to go through those either.

Pain still [2007-10-27]
I feel for you. I am going through the same thing. Lyrica does not have very good ratings for fibro even though they think it does. It causes more swelling which causes more pain. Have you had a recent DEXA scan? I think you need to find a rheumatologist that also treats fibro or a good naturopath. They look at the underlying cause, i.e. Epstein-Barr virus, Candida, etc. My pain doctor gave me methadone like it was candy-no thanks. Best of luck to you. Like you, I don't have much faith in the doctors any more. It's all about money.

head pain and pain clinic [2007-10-27]
Geez, the doctor gave me methadone. I am terrified of taking this. I revisited another surgeon who is going to repeat a CAT scan of my neck and a SPECT scan to see if anything lights up. He feels I could have fibro as it develops after trauma especially after some surgeries. At least he listened. He wasn't too keen on the methadone, thought I should stick with other pain meds. I am so sick of meds that don't work or make me sick. I am extremely chemically sensitive. I also have a red rash on my occiput where the pain is. I hope my brains aren't trying to push out. Geez. I have just about had it. A naturopath here wants me to try her cold laser therapy on my skull but don't know much about it and don't have the money to try it out. Anyway, I'm still at square one. I am sure this is all fibro as I have the trigger points according to the chart - have 14 out of 16. I also have very big knuckles, another sign of fibro as the calcium collects there. Well, good luck to all.

Annabanana on pain site [2007-10-25]
Went to pain clinic like I was talking about and when telling the physician my diagnosis could read in his face he did not believe in a fibro diagnosis. I even told him - you doncares.

Head and rib pain [2007-10-20]
Hi, Well my neurologist has dumped me-cannot find anything else to give me. I am so depressed. My ribs hurt too. I think it is all muscle related fibro pain. I had 1 hour of massage and also an hour of accupuncture with no relief. My sternocleidomastoid muscles feel like they are tearing behind my ears, cannot wear my glasses any more. I feel like I am about ready to have a heart attack from the muscle spasms over the ribs. I am going to increase my magnesium intake and see if that helps. My latest MRI of my neck does not look good either although the neuro says it is normal. The doctorsall make me sick. I had a posterior cervical laminectomy in 2002 for spinal stenosis, then the C2 nerve ablation in 2004 for the headaches. Now I have unbearable head pain. Wish I could go to the Bonati Laser Spine Clinic in Florida. I think they could help me. I am worried I have arachnoiditis. Dona friend with occipital neuralgia and trigeminal neuralgia that takes Avinza and Neurontin and got relief of her pain but I cannot take Neurontin. I do not know the answer any more.

forgot to mention this [2007-10-20]
Two doctors said I possibly have a neuroma in the area where the neurosurgeon cut the C2 nerve root. They say it branches out like a tree root in my head but there is no test to show this. Crazy huh? MRI of C spine did not show it nor did CT scan of head. I really would like another MRI of my brain but cannot get one. Also having facial spasms and eye spasms and deep nerve pain in both ears. I am so scared. Anyway for fibro I learned from my fibro friends that it is important to take the magnesium separate from the calcium as the calcium builds up, does not bind with the magnesium,thus my bone spurs. Also I have big knuckles, another sign of calcium buildup in fibro and scaly scalp. We supposedly have too much phosphate in our body, thus a lot of fibros take the guiafenesin which releases it from our bodies. This excess phosphate causes the muscle spasms. Dr. St. Amand's book explains all of this. It can even cause spinal stenosis. We all need more magnesium, even as much as 2500 mg a day and to get our levels tested. Anyway enough said. I hope we all get better with something. I know I cannot go on like this.

Big bust [2007-10-16]
Posted on the gab board because believe most read that instead of this but the pain clinic this morning was like I wish almost had not gone. Asked if fibro treated there up front, told yes and then the physician I saw did not believe in it- even though he says he treats some patients with overall pain?? I am tired of trying really and just wanted for something to take severe pain away so I CAN WORK. Told him severe rib pain all around, he did not believe that and gave me Flexeril because I know he is probably thinking muscle instead of ribs. Back to first base so to speak. Am really disappointed in the medical field right now.

Have you tried Excedrin Migraine? sm [2007-10-11]
I have fibro with vasculitis (including aneurysms)and get migraines triggered by high heat and high humidity. I have Darvocet for that but don't like to take it all the time-makes me too sleepy to work. I tried Excedrin Migraine last month and it knocks out the pain not only in my head but also in my shoulders from typing and my ankles, too. I have a bottle at my desk and take 2 when I feel the headaches coming on. Just a thought.

brain MRI [2007-10-06]
No, my neuro has not called me back either. The head pain is just horrifying and the chest pain too. Does anyone else have chest pain from fibro?

ER visit and pain clinic [2007-10-01]
Had to call an ambulance yesterday because of the skull pain. Had a blood glucose of 140 in the ambulance and Afib. Went to ER, they gave me fentanyl which did nothing. Left a message for neurologist, no one has called. I am having debilitating migraines and skull pain. Have not yet started Lyrica because of the s/e. Have been to the pain clinic. They offer occipital nerve blocks, nortriptyline, Neurontin, Lyrica and breakthrough meds. It just depends on what works. Some things work for some of us and others donand also collostin. Dr. Paul St. Amand's book says it all. Hope this helps.

Went to a clinic several years ago but [2007-09-29]
for a different reason, foot pain and get this, after say 6-7 years of putting up with that, a person here on MTs told me they had similar, suggested trying arch supports, did, wear them all the time and almost 99.9% improvement! I have no problem at all with signing consent form as I did in the past nor do I care about random testing. I did attend the arthritic swim classes and the pain was so bad. As I said before, want just enough to take the edge off, don�t like being zonked because it takes all to do this job. I have been so disappointed in the fact feel like I have had to do my own doctoring for anything and now the fibro seems to have settled in the rib cage. This has been going on now since at least the first of August, not relenting at all. I am in my 60s and most of the drug scene came after I was grown so I am definitely not a drug seeker. I understand how the clinics work- I could go for a patch, salve, ointment, whatever as long as I can take the edge off of this terrible pain that I have had to suffer through without any assistance from my primary, rheumatologists, etc. I have lost a lot of respect for the medical community in that I have had to grasp at straws just trying to assist my own self. You can believe it when I say I have spent the last 6 or so years hunting, seeking, trying to get relief without the pain clinic- I self-referred myself there- no physician did that for me- knew they were there but trying to take care of myself not going to the pain clinic, didn�t happen.

Pain and fatigue [2007-09-19]
I've had fibro for the past 15 years - i contracted rheumatic fever and fifth's disease at the same time - and the pain just never left I do sleep a lot - and work very little. My life is very stressful right now - i'm moving soon and hopefully the stress will be somewhat relieved. I spent over 10 years taking prednisone and penicillin that an internist prescribed. I finally got with a pain management specialist and they put me on oxycontin - which I got off of this past May - the had kept upping my dose - i am now maintained on Norco (because I have diabetes) and Soma. The combination of these 2 seem to help with the pain - but the fatigue - haven't found anything that helps with that. I got lost in the Wal-mart parking lot Friday night and a man came up to me and asked me if I needed to go to the hospital - I told him I was looking for my car and was headed back up to the hospital when I found it (I had gone to pick up some things for a friend who was a patient) - it wasn't so funny then - but now I can laugh at the situation.

pain treatment sm [2007-09-18]
There is a spray on called Bio Freeze, got it from PT, I don ortho guy said he was a surgeon, take Tylenol and Tylenol PM, fingers are getting deformed and my back feels like someone took a baseball bat to it and it's broken in half. I find microwave heat pads which you can buy at mall or online, contains rice and sometimes scented stuff like lavendar, but brings relief when I lie flat. Understand the pain and its interference with our profession, it's horrible. I even tried a Nada chair which is on line (it is not a chair, just a belt) and pulls your spine forward, hooks over the knees, helps sometimes. Have tried it all, find no compassion from the docs, sometimes it is extremely depressing to feel this way. Take the extra D, calcium, Actonel, no help there!

severe head pain with fibro [2007-09-10]
OUCH, my head is killing me, like giant snakes trying to push out of my skull. The rheumatologist gave me Lyrica. Has anyone taken this? No one can figure out what is wrong with me. Have had C3-6 laminectomy (2002) and C2 nerve root ablation (2004). One doc says fibro, the other occipital neuralgia and the other degenerative disk disease and straight neck. I am about ready for the ER. Also having eczema on face. Just shoot me please!