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Need help with fibromyalgia. (sm) [2008-05-08]
Has anybody found a doctor that's helped much with fibromyalgia?
Any good new updates on treatments or help to relieve the pain?
Thanks.
Fibromyalgia folks also and Mary, got the email about injection [2008-02-14]
I went back to pain clinic the first of this week- the other thoracic lasted for, ahh, 4 days- and the PA said well we should repeat and I said no, have turned down all hard medications before and now I said want Lortab for really bad pain - they monitor and I only take 1/2 tablet if needed. Now having said this, let me tell you what I found out about a health food store item called Ribose- I started taking nearly 2 weeks ago now and so far so good- read an article saying how much it had helped person's fibro- I gave it a chance. I will continue to stay on it as long as out of that excruciating pain.
I need some suggestions regarding fibromyalgia and exercise. [2008-01-16]
Well, I I bought the DVDs to do at home as well. My plan is to warm up, do the dance class, swim a couple of laps and get in the jacuzzi. My problem is that once I start exercising I throw into a fibro flare and I I can also get a massage in between every so often. Any feedback or suggestions are MOST welcome! Oh, my goal is to lose 50 lbs. Thank you!!!!!!!!!!
Fibromyalgia and Yoga [2007-11-05]
It I just wasn't able to browse the entire board, but of the random posts I read, they were mostly about pills. My rheumatologist had recommended Yoga stretches because I didn't want the pills. Not only does it help with the pain, it helps with the fatigue, big time, and any sleep disturbances. For me, anyway. Also, I can't recommend Yoga unless a doctor tells you it won't hurt you---other conditions can be exacerbated by it.
I bought a book on Hatha Yoga andlearned from that.I don not the person's in the book. No forcing yourself into ANYTHING. You may progress as time goes on, but never force yourself.
Anyway, was diagnosed 12 years ago, and have had a lot of success with the Yoga. It has to be done regularly, especially when first starting out, so that you become limber. The more limber, the more relaxed. Again, not without a doc's assurance that you're not hurting yourself.
Fibromyalgia [2007-09-10]
Does anyone else here on the board have fibromyalgia. I'm 40, and also have rheumatoid arthritis and a B12 deficiency, but basically, my questions regard fibromyalgia and the extreme PAIN AND FATIGUE that come with it.
suggestions [2007-09-08]
Hi,
The deacons from my church give me rides to the doctors, etc. Maybe a church in your area has this program. Try increasing magnesium for the muscle pain and eating apples as they contain malic acid which helps the muscle pain too. Maryland Square has the most comfortable shoewear - 1-800-727-3895 for catalogue.
Suggestions for assistance [2007-09-06]
I posted below about dealing with severe muscle pain. I am 25 and have been depending on my mother to help with things that are difficult for me to do (grocery shopping, most errands, sometimes even cleaning/vacuuming). A trip to the store causes severe pain for sometimes 2 days. Anyway, my mother is following her dream of traveling across the country, working along the way.
Does anyone have any tricks they use to help them do stuff? Certain shoes, certain services, anything? We have a food delivery service locally, but it doesn It also wouldn Any sort of suggestions at all would be very much appreciated!
Fibromyalgia and CFS sm [2007-08-20]
I was under the impression that fibromyalgia and chronic fatigue syndrome diagnoses were made pretty much when other causes for the symptoms had been ruled out. Is this still true?? Well, I doknow there is a trigger point test for fibro, but to this untrained person, it sounds like that may be what the problem is - one or the other. Then again, I haven't been studying up on them for a couple of years so maybe new tests have come out or something.
fibromyalgia [2007-06-08]
fibro could be for fibromyalgia
Exercise really helps [2007-04-09]
I agree with you about fecklessness of rheumatologist. I havenweather that. I was back on the trail today. I don't think I'll ever go to the rheumatologist again. My PMD will write refills on the diclofenac. At the rate I'm going, I won't even need 30 pills a year. I hope excercise proves to be as helpful for you as it is for me
Sounds perfect! Thanks so much! [2008-08-12]
I started something similar today, but I like your I know its just day 1 but I Then the minute I But when I lay flat in bed, forget about it. Its not my baseline pain, its withdrawal, the squirrely electric-like sensations, stomach cramping, chills, Hey wait! Maybe its menopause and a hot flash, too! Wouldn It was so neat, but I had no idea what it was. Thought it was a stick paper dispenser or something, and nearly razored my finger tip off when I said, ooh, what Sending a hidden razor blade in an unidentified thingamajiggie to a blonde is NOT a good idea! LOL. Thanks again! I'll keep you posted, if you would like.
First off, Hello everyone.........sm [2008-07-23]
this is my first time on this board. I am 43 yrs old, suffer from fibromyalgia. I have had this pain for about 1-1/2 yrs but got officially diagnosed in September of 2007. I have been on narcotics, tried different types of meds like Lyrica (BAD side effects) Prozac, wellbutrin, neurontin (made me swell), Lortab, Xanax, Flexeril.
Well, the Lortab and Flexeril helped at first, but Lortab does nothing for me, so my doc put me on Percocet 10 mg and I am still on Xanax. I was also started on Cymbalta (2nd day).....She told me to take it at bedtime, but I am WIDE AWAKE but she says this will wear off after a while.
I had to quit a good paying job with health benefits because the stress of that job was making me have a nervous breakdown, I was hurting 3 x more than the normal pain and the company, well that is another story for another time.
I have gone thru testing for lupus, MS, RA, etc.....I just got another job as an employee but still wondering IF I should take the insurance, which I probably will not as it is WAY too expensive.
I am not even sure I will last at this job as an employee because shift work just does not work for me anymore. I am so tired of always being in pain, having to pop pills and feel like a druggie and I am so afraid I will get hooked.
Well, I know this is long and if you read up to this point, thank you...I have started the application process for disability because this disorder has me in the poor house as I am unable to keep a job because of this. I know they may not approve me, OR if they do, it may take years....
Anyone with FBM, what do you do, what meds are you on, how do you cope without feeling like you just want to cry and scream and control the mood swings?
I also take magnesium, fish oil, B vitamins.... I push myself just to sit at this computer to start working. The company I was hired with, they let me tell them what hours I preferred and of course, I chose hours to start later in the mornings (mid mornings). Upon awakening, it takes me a good 3 hours just to get myself together, I do my stretches, I take my meds, take a bath/shower, get dressed, fix hair, and put my makeup on. I try to do everything before all of this happened so that I can at least feel like my old normal self....but is is so hard.
Please excuse the typos, I am now just getting groggy and will take advantage of that and hit the sack.
To Donna regarding RA [2008-06-18]
I was diagnosed with RA three years ago. I completely understand about prednisone and weight gain. I was between a size 6 and 8, and after being on prednisone for a few months, I went up to a 10 and then leveled off at a 12. That isn and have really small bones. My advice there would be to do as much exercise as you can, anything to help counter the prednisone. Exercise will help with your stress level too.
The prednisone was a high dose initially to help get my RA under control. Several months later, I went on methotrexate, 6 pills/weekly. Then in Sept 2007, I started on Remicade, which works along with the methotrexate. It's very expensive, but I feel better than I have in years and my inflammation is finally under good control. I also have a lot more energy, so I've gotten back to my exercise regimen and am slowly getting my weight under control.
Depo provera and fybromyalgia [2008-05-29]
I was not aware of any connection between Depo Provera and Fibromyalgia.
I had Depo injections in 1987/1988. I became unwell in 1993. In 1999 I was diagnosed with CFS. I have seen 3 neurologists who all agreed the diagnosis.
My partner is a Senior Biomedical Scientist here in UK and he suggested I ask for a c-reactive protein test and Rheumatoid Factor test late last year. Both had a positive reading. My GP said they were False Positives. I had to pay to see private Rheumatologist and early this year I was diagnosed with Fibromyalgia. Further Bone scans showed I have Rheumatoid Arthritis. This results is after 14 years of no real treatment.
Could this have any link to my using Depo Provera for 2 years 20 years ago?
I have seen other articles from the states about a link and wanted to add my plight to the debate.
I would be grateful to find out more.
www.helen419@btinternet.com
Need help with fibromyalgia. (sm) [2008-05-08]
Has anybody found a doctor that's helped much with fibromyalgia?
Any good new updates on treatments or help to relieve the pain?
Thanks.
high ANA [2008-05-02]
As I was recently told I had an elevated ANA....I have done some research and an elevated ANA can occur in people that are healthy individuals, if your family has a history of autoimmune disorder, if you are female and of older age...among the different diagnoses...Scleroderma, RArthritis, Sjogrens, Hashimotos thyroiditis, hepatitis, some viral infections, type 1 diabetes, addison's disease, certain medications (Aldomet, Enbrel, Remicade), polymositis, Raynauds syndrome, vitamin b12 deficiency, idopathic thrombocytopenia, fibromyalgia, and anemia. There are so many different reasons an ANA can be elevated. Also, an ANA can be a false positive in some otherwise healthy individuals if the ANA is positive and no symptoms are evident.
I can only think of what I do [2008-01-29]
with my dogs (sorry about bringing my dogs into the equation :) and that is a proper diet and exercise.
Additionally, with my goldens, and this breed is known to be predisposed toautoimmune disorders ranging fromhypothyroidism to autoimmune hemolytic anemia, arthritis,and skin disorders, is togive them a really good supplement. One of the supplements is Missing Link, and believe it or not, this company also makes a human grade, too. This is called Master Nutrient Formula.
http://www.ntphealthproducts.com/missing_link_human.html
http://www.mypatienteducation.com/om3bamanufo.html
http://www.911healthshop.com/om3basbydesh.html
I included the three links. Thefirst oneexplains what the productcontains, but that company isveryexpensive. The other twofor price comparison and are more or less in the correct range.I'm sure you can find this product locally as well.
I can only think of what I do [2008-01-29]
with my dogs (sorry about bringing my dogs into the equation :) and that is a proper diet and exercise.
Additionally, with my goldens, and this breed is known to be predisposed toautoimmune disorders ranging fromhypothyroidism to autoimmune hemolytic anemia, arthritis,and skin disorders, is togive them a really good supplement. One of the supplements is Missing Link, and believe it or not, this company also makes a human grade, too. This is called Master Nutrient Formula.
http://www.ntphealthproducts.com/missing_link_human.html
http://www.mypatienteducation.com/om3bamanufo.html
http://www.911healthshop.com/om3basbydesh.html
I included the three links. Thefirst oneexplains what the productcontains, but that company isveryexpensive. The other twofor price comparison and are more or less in the correct range.I'm sure you can find this product locally as well.
I can only think of what I do [2008-01-29]
with my dogs (sorry about bringing my dogs into the equation :) and that is a proper diet and exercise.
Additionally, with my goldens, and this breed is known to be predisposed toautoimmune disorders ranging fromhypothyroidism to autoimmune hemolytic anemia, arthritis,and skin disorders, is togive them a really good supplement. One of the supplements is Missing Link, and believe it or not, this company also makes a human grade, too. This is called Master Nutrient Formula.
http://www.ntphealthproducts.com/missing_link_human.html
http://www.mypatienteducation.com/om3bamanufo.html
http://www.911healthshop.com/om3basbydesh.html
I included the three links. Thefirst has a good explanation onwhat the productcontains, but that company isveryexpensive. The other twofor price comparison, and are more or less in the correct range.I'm sure you can find this product locally as well.
I need some suggestions regarding fibromyalgia and exercise. [2008-01-16]
Well, I I bought the DVDs to do at home as well. My plan is to warm up, do the dance class, swim a couple of laps and get in the jacuzzi. My problem is that once I start exercising I throw into a fibro flare and I I can also get a massage in between every so often. Any feedback or suggestions are MOST welcome! Oh, my goal is to lose 50 lbs. Thank you!!!!!!!!!!
Cipro and fibro [2008-01-07]
I notified my local fibromyalgia coalition here and they are writing an article about what these drugs do, i.e. causing and worsening fibro. Anyone affected by these drugs needs to notify the FDA. I did and they sent me a letter saying they would investigate it. Some people have sued for the side effects of Levaquin. I will never take any fluoros again. My friend was completely shut down from a month of these drugs with no reversal.
Mary, never knew that about Cipro. I took it for UTI and WOW, I had [2008-01-06]
point of unbearable. My doc said he had never heard of such a thing and I told him that I had fibromyalgia and he said that it must be a flare up due to the UTI. Bulloney! I now see an MD who is ALSO an NMD, so I have the best of both worlds and my insurance covers my visits and meds. As well, he sees his patients at the hospital if they have to be admitted.
Fibromyalgia and Yoga [2007-11-05]
It I just wasn't able to browse the entire board, but of the random posts I read, they were mostly about pills. My rheumatologist had recommended Yoga stretches because I didn't want the pills. Not only does it help with the pain, it helps with the fatigue, big time, and any sleep disturbances. For me, anyway. Also, I can't recommend Yoga unless a doctor tells you it won't hurt you---other conditions can be exacerbated by it.
I bought a book on Hatha Yoga andlearned from that.I don not the person's in the book. No forcing yourself into ANYTHING. You may progress as time goes on, but never force yourself.
Anyway, was diagnosed 12 years ago, and have had a lot of success with the Yoga. It has to be done regularly, especially when first starting out, so that you become limber. The more limber, the more relaxed. Again, not without a doc's assurance that you're not hurting yourself.
No, have not waited to see anyone [2007-11-04]
I have been sent from this 1 to that 1 WITHOUT any assistance. My primary care physician sent me to rheumatologist- did brief exam, gave Lyrica, not told to come back, just call, went to a pain clinic where I ASKED before going - do you treat fibromyalgia and told yes -then looked at like I had 2 heads- they did nothing- told me they call me to give follow up?? This was new to me. In my leisure time- ha - I have gone to have dental implants with grafting of bone, had MRI for kidney cysts that I have, then go to endocrinologist for thyroid problem- then almost forgot the podiastrist for fungus and then I have to have outside lab work done for the podiastrist, endocrinologist- plus work - as you can see I have had so much time on my hands having to buy some more bon-bons and get new file for my nails.
Still another pain clinic -anyone with steroid injections? [2007-11-03]
I posted about going to a pain clinic and when I mentioned fibromyalgia, the physician looked at me like I had 2 heads. I said, you don’t believe in that diagnosis - at which time he said lots of people come in saying they have pain. Good way of skirting the question. To make long story short, am not returning to him. When I told him rib pain he kept saying chest pain- somehow or nother I associated chest pain with an MI. Anyway, yesterday returned to a previous pain clinic I went to about 2 years ago (should have returned there in the first place) but had moved- long story short again- told them about my diagnosis (hey I do not make up the diagnosis, rheumatologist told me I had) and now they are planning on steroid injections into the cartilage around the ribs. Was trying to say possibly chondrochondritis - hey I believe that is the same diagnosis I mentioned to my primary care physician about oh 4 months ago maybe and he gave it not another thought. The clinic wants to do MRI first (looking for other causes as in something worse) but I told them yesterday pain really all over- ribs worse- but hands, elbows, feet, legs. The pain is every day- sometimes horrific- sometimes just there. Told my aunt last night person should not have to live every day with pain. Got the injections set up for the 12th of this month. I am hoping at least to get some relief in the rib section- person at clinic told me to increase Tramadol to 50 mg 3 times a day (had been taking once a day- told that was not enough). Will post later and keeping those fingers crossed that this helps me.
I am glad they are finally going to [2007-11-03]
address your rib pain.
Since MDs in your area are turned off by patients coming in and using the term fibromyalgia, I would stop using it. I have done this also, but a lot of MDs want to make their own diagnosis, and fibromyalgia is a diagnosis. I think they want patients to come in using terms like pain, and using regular English adjectives to describe the pain, and pointing to where the pain is.
Since they have agreed to treat your rib pain as costochondritis, I am very happy for you. IWell, really the pain is everywhere ... What you need is to get them to try to relieve your worst pain. If you can get some pain relief, you might be able to achieve some muscle relaxation and get some sleep. Then your other pains have a chance of improving, IMO.
I do hope you get improvement in your pain. You have had a terrible time of it.
Head pain [2007-10-20]
I have not found anything that helps yet. Take valium and pain pills, cannot take Neurontin. I think it is either fibromyalgia or occipital neuralgia or both. I can hardly function too, cannot drive far because of the dizziness. My last MRI of my neck showed DDD and bone spurs. Nortriptyline at night helped but caused me heart palpitations. More magnesium helps.
Is it chest pain that hurts [2007-10-06]
when you press on it? Is it more of the ribs, or possibly between the ribs? Or is it at the arch under the sternum?
Does pain increase with lifting your arms? With exercise?
Or how would you describe the chest pain?
That is very interesting, because [2007-09-30]
I had doctors tell me they thought I might have fibromyalgia, even though I didn't have as many pain points as the dx calls for. But after physical therapy type massage, relaxation therapy with biofeedback, and then joining a gym and exercising with free weights, weight machines, and aerobic stuff, and learning how to stretch and doing it after every exercise session, I have no chronic pain issues today. And all I do for exercise now is walking my dogs, but I'm much more aware of the importance of relaxing.
Appt for pain clinic [2007-09-29]
I have posted here several times about the fibromyalgia that seems to always be there, sometimes horrific, sometimes just subtle pain. I finally decided to approach going to a pain clinic for this being as everyone else I have gone to or been referred to has done absolutely nothing to help me with dealing with the pain. I do not care about being on anything that is addictive, all I want is to have the edge off the pain so I can continue working and living a halfway pain free life. Is there anyone here who has been to a pain clinic, what type of treatment did you receive and what has seemed to be effective in keeping the pain somewhat at bay? I have found most of the medical field sorely lacking in response to pain, even when you carry this diagnosis. Right now I have ibuprofen and do not care to take lots of that because it can be harmful to kidneys if overdone. Thanks for any information you might be able to share.
pain clinics [2007-09-29]
I transcribe for a pain clinic. You should find the help you need there, but you should be patient because it may not come with just the first visit. Different things work for different people. Don These things are necessary to weed out drug-seekers, and what better place for a drug-seeker to get strong meds than a pain clinic?
About five years ago I transcribed for a nurse practitioner who specializes in fibromyalgia. From that transcription experience, I learned that your best hope for lasting pain relief from fibromyalgia is regularstretching and exercise. The patients who really improved learned to exercise through the pain, then the pain went away. Good luck!
reply [2007-09-12]
I was diagnosed with rheumatoid arthritis at 33 and fibromyalgia at 37 - I am now 40. I take large doses of Vicodin for pain.
Fibromyalgia [2007-09-10]
Does anyone else here on the board have fibromyalgia. I'm 40, and also have rheumatoid arthritis and a B12 deficiency, but basically, my questions regard fibromyalgia and the extreme PAIN AND FATIGUE that come with it.
My neurologist once let me try a [2007-09-09]
lidocaine patch when I was having meralgia paresthetica (nerve pain down front/side of thigh). You might like it, but I found it had a freezing cold sensation that freaked me out. But I don't like the coldness of eye drops either, so maybe I'm just weird. But they are expensive, so hopefully you could get a sample one to try like I did. It is Rx only.
Have you ever tried those mineral salts you can put in the tub and soak with? Some of them say they are good for pain.
My doctors have thought I had fibromyalgia before, but I've had long pain-free times, so I'm not convinced I do. I think I just have problems when I forget how to relax my muscles for too long.
These are things I tried yesterday [2007-09-09]
I got some cherry concentrate, mixed that with a little bit of water and drank that (helps gout), next hubs got me some vitamin D, took that (got email yesterday talking about lack of Vitamin D causing bone pain), took a new womens vitamin hubs said should be good, rubbed my upper torso with similar to Ben-Gay (was I smelly last night, home alone though so alright), slept in a thermal shirt and this morning have some relief. Now what if any of these helped?? Needless to say I repeated all the above this morning. I do not know if maybe the fibro decided to give me a half-way day off without excruciating pain or did any of the above work. I am open to all suggestions. As far as the heating suggestion above, I did buy and wear a cold-hot heating pad, helped some for about 2 days and then pain again. This is not fun!
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