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? Thoracic Outlet Syndrome, ? Neurontin [2008-01-11]
At one time it was thought that I had a left-sided thoracic outlet syndrome. Comes to find out, I have a left ulnar neuropathy. My pain originated in the upper part of my left arm andI had a lot of pain in my elbow. This pain then went down the outside of my arm to my little finger and ring finger Also, my little finger and the outside of my ring finger were numb but painful. (yup, it can happen at once!!) And, cold!! Holy cow, both my hands were cold!!! My left hand was sooo very cold, especially when cleaningsnow off my car or ice off the windshield. Other symptoms I had/have aredecreased hand grip in left handand muscle wasting. Has your doc prescribed Neurontin or Lyrica? Neurontinhas helped me tremendously.
Mary, I rememberthe way I was treated...here I could walk OK, didnThe person who brought itall together for me was my neurologist...he believed me. He said that the symptoms I was experiencing was normalfor a person with my diagnosis, and, thankfully, he wrote thisin my consult record. Iare twolinks that might be of some help.http://www.neurologyarticles.com/ There might be some really good info on the emedicine: http://www.emedicine.com/neuro/index.shtml#neuromuscular
Here are good thougths going your way Isure hope the doctor will be able to find theproper treatment. Boy, enough is enough, eh? Let us know how you make out on Monday.
Have you tried Neurontin, or could it be [2008-01-11]
thoracic outlet syndrome?
At one time it was thought that I had a left-sided thoracic outlet syndrome. Comes to find out, I have a left ulnar neuropathy. My pain originated in the upper part of my left arm andI had a lot of pain in my elbow. This pain then went down the outside of my arm to my little finger and ring finger Also, my little finger and the outside of my ring finger were numb but painful. (yup, it can happen at once!!) And, cold!! Holy cow, both my hands were cold!!! My left hand was sooo very cold, especially when cleaningsnow off my car or ice off the windshield. Other symptoms I had/have aredecreased hand grip in left handand muscle wasting. Has your doc prescribed Neurontin or Lyrica? Neurontinhas helped me tremendously.
Mary, I rememberthe way I was treated...here I could walk OK, didnThe person who brought itall together for me was my neurologist...he believed me. He said that the symptoms I was experiencing was normalfor a person with my diagnosis, and, thankfully, he wrote thisin my consult record. Iare twolinks that might be of some help.http://www.neurologyarticles.com/ There might be some really good info on the emedicine: http://www.emedicine.com/neuro/index.shtml#neuromuscular
Here are good thougths going your way Isure hope the doctor will be able to find theproper treatment. Boy, enough is enough, eh? Let us know how you make out on Monday.
Neurontin [2008-01-09]
I take 600 mg in the morn, 300 in afternoon, and another 600 at night. I find it works quite well.
I use this and Ultram fora left ulnar neuropathy andsevere DDD.
Neurontin [2008-01-09]
Thanks.
Neurontin for pain [2008-01-08]
Hi,
Anyone take Neurontin with success for the nerve pain? Thanks.
To MT in pain [2008-07-28]
Have you tried Paxil, Celexa, or Lexapro? They're suppose to elevate your pain threshold....Elavil is suppose to do the same thing.
Ihappy! :) Can you take Ambien to counteract the Cymbalta?
First off, Hello everyone.........sm [2008-07-23]
this is my first time on this board. I am 43 yrs old, suffer from fibromyalgia. I have had this pain for about 1-1/2 yrs but got officially diagnosed in September of 2007. I have been on narcotics, tried different types of meds like Lyrica (BAD side effects) Prozac, wellbutrin, Neurontin (made me swell), Lortab, Xanax, Flexeril.
Well, the Lortab and Flexeril helped at first, but Lortab does nothing for me, so my doc put me on Percocet 10 mg and I am still on Xanax. I was also started on Cymbalta (2nd day).....She told me to take it at bedtime, but I am WIDE AWAKE but she says this will wear off after a while.
I had to quit a good paying job with health benefits because the stress of that job was making me have a nervous breakdown, I was hurting 3 x more than the normal pain and the company, well that is another story for another time.
I have gone thru testing for lupus, MS, RA, etc.....I just got another job as an employee but still wondering IF I should take the insurance, which I probably will not as it is WAY too expensive.
I am not even sure I will last at this job as an employee because shift work just does not work for me anymore. I am so tired of always being in pain, having to pop pills and feel like a druggie and I am so afraid I will get hooked.
Well, I know this is long and if you read up to this point, thank you...I have started the application process for disability because this disorder has me in the poor house as I am unable to keep a job because of this. I know they may not approve me, OR if they do, it may take years....
Anyone with FBM, what do you do, what meds are you on, how do you cope without feeling like you just want to cry and scream and control the mood swings?
I also take magnesium, fish oil, B vitamins.... I push myself just to sit at this computer to start working. The company I was hired with, they let me tell them what hours I preferred and of course, I chose hours to start later in the mornings (mid mornings). Upon awakening, it takes me a good 3 hours just to get myself together, I do my stretches, I take my meds, take a bath/shower, get dressed, fix hair, and put my makeup on. I try to do everything before all of this happened so that I can at least feel like my old normal self....but is is so hard.
Please excuse the typos, I am now just getting groggy and will take advantage of that and hit the sack.
Pain clinic [2008-02-19]
Well I chickened out on the ESI but got occipital nerve blocks. I am very sensitive to the steroids plus they were going to do it at T1 which is right below my surgical incision. I am dizzy today but maybe it will calm it down. They want to do more but I am afraid I won't have an immune system left. I wish I could find the right med that I could tolerate, cannot take Cymbalta, Lyrica or nortriptyline. The Neurontin gives me nausea. Any ideas would be appreciated. Also if any of you have cervical problems what type of pillow do you use? Thanks again.
thoracic outlet syndrome [2008-01-12]
Yes I have those same symptoms, cold hands, wasting right trapezius muscle. I will try the Neurontin again. Thanks so much.
? Thoracic Outlet Syndrome, ? Neurontin [2008-01-11]
At one time it was thought that I had a left-sided thoracic outlet syndrome. Comes to find out, I have a left ulnar neuropathy. My pain originated in the upper part of my left arm andI had a lot of pain in my elbow. This pain then went down the outside of my arm to my little finger and ring finger Also, my little finger and the outside of my ring finger were numb but painful. (yup, it can happen at once!!) And, cold!! Holy cow, both my hands were cold!!! My left hand was sooo very cold, especially when cleaningsnow off my car or ice off the windshield. Other symptoms I had/have aredecreased hand grip in left handand muscle wasting. Has your doc prescribed Neurontin or Lyrica? Neurontinhas helped me tremendously.
Mary, I rememberthe way I was treated...here I could walk OK, didnThe person who brought itall together for me was my neurologist...he believed me. He said that the symptoms I was experiencing was normalfor a person with my diagnosis, and, thankfully, he wrote thisin my consult record. Iare twolinks that might be of some help.http://www.neurologyarticles.com/ There might be some really good info on the emedicine: http://www.emedicine.com/neuro/index.shtml#neuromuscular
Here are good thougths going your way Isure hope the doctor will be able to find theproper treatment. Boy, enough is enough, eh? Let us know how you make out on Monday.
Have you tried Neurontin, or could it be [2008-01-11]
thoracic outlet syndrome?
At one time it was thought that I had a left-sided thoracic outlet syndrome. Comes to find out, I have a left ulnar neuropathy. My pain originated in the upper part of my left arm andI had a lot of pain in my elbow. This pain then went down the outside of my arm to my little finger and ring finger Also, my little finger and the outside of my ring finger were numb but painful. (yup, it can happen at once!!) And, cold!! Holy cow, both my hands were cold!!! My left hand was sooo very cold, especially when cleaningsnow off my car or ice off the windshield. Other symptoms I had/have aredecreased hand grip in left handand muscle wasting. Has your doc prescribed Neurontin or Lyrica? Neurontinhas helped me tremendously.
Mary, I rememberthe way I was treated...here I could walk OK, didnThe person who brought itall together for me was my neurologist...he believed me. He said that the symptoms I was experiencing was normalfor a person with my diagnosis, and, thankfully, he wrote thisin my consult record. Iare twolinks that might be of some help.http://www.neurologyarticles.com/ There might be some really good info on the emedicine: http://www.emedicine.com/neuro/index.shtml#neuromuscular
Here are good thougths going your way Isure hope the doctor will be able to find theproper treatment. Boy, enough is enough, eh? Let us know how you make out on Monday.
Neurontin for pain [2008-01-08]
Hi,
Anyone take Neurontin with success for the nerve pain? Thanks.
Head pain [2007-10-20]
I have not found anything that helps yet. Take valium and pain pills, cannot take Neurontin. I think it is either fibromyalgia or occipital neuralgia or both. I can hardly function too, cannot drive far because of the dizziness. My last MRI of my neck showed DDD and bone spurs. Nortriptyline at night helped but caused me heart palpitations. More magnesium helps.
Head and rib pain [2007-10-20]
Hi,
Well my neurologist has dumped me-cannot find anything else to give me. I am so depressed. My ribs hurt too. I think it is all muscle related fibro pain. I had 1 hour of massage and also an hour of accupuncture with no relief. My sternocleidomastoid muscles feel like they are tearing behind my ears, cannot wear my glasses any more. I feel like I am about ready to have a heart attack from the muscle spasms over the ribs. I am going to increase my magnesium intake and see if that helps. My latest MRI of my neck does not look good either although the neuro says it is normal. The doctorsall make me sick. I had a posterior cervical laminectomy in 2002 for spinal stenosis, then the C2 nerve ablation in 2004 for the headaches. Now I have unbearable head pain. Wish I could go to the Bonati Laser Spine Clinic in Florida. I think they could help me. I am worried I have arachnoiditis. Dona friend with occipital neuralgia and trigeminal neuralgia that takes Avinza and Neurontin and got relief of her pain but I cannot take Neurontin. I do not know the answer any more.
brain MRI [2007-10-03]
No, they did a CAT scan of my brain thinking I might have had an aneurysm. My eyes are very light sensitive, flashing lights and black specks in the sun. It was negative. Have not heard a thing from my neurologist. I am so afraid of having MS but at my age it is doubtful. Horrifying skull pain, occipttal neuralgia and very tight muscles, headache 24/7. Cannot tolerate Neurontin, nortriptyline. This pain is next in line to trigeminal neuralgia.
ER visit and pain clinic [2007-10-01]
Had to call an ambulance yesterday because of the skull pain. Had a blood glucose of 140 in the ambulance and Afib. Went to ER, they gave me fentanyl which did nothing. Left a message for neurologist, no one has called. I am having debilitating migraines and skull pain. Have not yet started Lyrica because of the s/e. Have been to the pain clinic. They offer occipital nerve blocks, nortriptyline, Neurontin, Lyrica and breakthrough meds. It just depends on what works. Some things work for some of us and others donand also collostin. Dr. Paul St. Amand's book says it all. Hope this helps.
I have the pins and needles feeling in [2007-06-02]
my feet and legs - doctor put me on Neurontin and i have not had any problems since.
fibro [2007-04-02]
my antidepressant is Zoloft 100 mg at bedtime. The rheumatologist put me on NSAIDs (Relafen 1500 mg) in January and although some think that the steroids do not help I found that they helped a great deal - especially the pain I was feeling over my hip area when I laid on my side or rolled over, etc - while it did not make the pain go completely away - the tenderness I felt diminished a great deal - I tend to think that everyone responds to different medications, treatment, etc - it seems that the treatment plan for each person differs like the symptoms differ from person to person. He also put me on Neurontin back in February to help with the tingling feeling I was having in my feet and hands -which has helped. I'm still in the beginning stages of fibro - so I'm sure my symptoms will change/intensify as time goes by. I have, however,felt great the last 3-4 days thank goodness - hope it last for a while (I know wishful thinking! - but hey a girl's gotta dream LOL!)...I too have cut down on my sugar and caffeine. Do you have muscle spasms? Lyrica was something he said I could try if the Neurontin didn't work for me - but the Lyrica is rather expensive and not the preferred drug on my insurance right now - so I opted for the Neurontin it so far so good - and I've not gained the weight that some people did - so maybe I'll be okay for a while on this med. Well I need to go sign on to work - I hope you and all the other fibro sufferers have a great week!!!
fibro [2007-03-27]
I no longer type. I am QA. Regarding the meds, the dentist said the tricyclics are hard on the gums. Do you have problems with your gums on your meds or excessive dryness? The doxepin really gave me cotton mouth. My pain is in my skull 24/7. The neurologist has given up on me as I have failed Tegretol, Neurontin and don't want to take Depakote. I am fearful of Cymbalta as a lot of people have killed themselves on this med and also coming off it is bad. I do some exercises but most times after work I just hit the couch.
So far .... [2007-03-26]
I am okay with the Neurontin - I only take it at night before bedtime. The NSAID hasn't bothered me at all - (knock on wood).
My fibro meds [2007-03-25]
My rheumatologist put me on 1500 mg of Relafen, 150 mg Zoloft, 600 mg of Neurontin and I take 50 mg of Tramadol p.r.n. and a muscle relaxer (Flexeril I think, not sure it is the generic form of whatever it is) p.r.n. also - I also occasionally take Halcion to get to sleep at night. So far so good - but I've only been on these meds since January and newly diagnosed as of January also.
Fibro meds [2007-03-25]
Wow. I could not tolerate Neurontin at all. It made me very sick and very tired. I am trying Doxepin at night, diazepam and sometimes Lortab. Cannot tolerate NSAIDS very well either. Does the one you are on mess up your stomach? I think it is coated. I am going to try glucosamine. I heard that helps fibro a lot. Do you have the yeast too? Hope not. I am trying to avoid sugar, but only weigh 100 pounds and need the calories. Not a fun condition at all. I hope your meds work well for you and thanks for sharing.
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