Oh, this was a thoracic forgot to mention

forgot something..... [2008-07-11]
also I might add, it is no longer on a time schedule...that was just the first few months, now it is all of the time!

Oh, this was a thoracic - forgot to mention [2008-01-29]
NM

thoracic outlet syndrome [2008-01-12]
Yes I have those same symptoms, cold hands, wasting right trapezius muscle. I will try the Neurontin again. Thanks so much.

? Thoracic Outlet Syndrome, ? Neurontin [2008-01-11]
At one time it was thought that I had a left-sided thoracic outlet syndrome. Comes to find out, I have a left ulnar neuropathy. My pain originated in the upper part of my left arm andI had a lot of pain in my elbow. This pain then went down the outside of my arm to my little finger and ring finger Also, my little finger and the outside of my ring finger were numb but painful. (yup, it can happen at once!!) And, cold!! Holy cow, both my hands were cold!!! My left hand was sooo very cold, especially when cleaningsnow off my car or ice off the windshield. Other symptoms I had/have aredecreased hand grip in left handand muscle wasting. Has your doc prescribed Neurontin or Lyrica? Neurontinhas helped me tremendously. Mary, I rememberthe way I was treated...here I could walk OK, didnThe person who brought itall together for me was my neurologist...he believed me. He said that the symptoms I was experiencing was normalfor a person with my diagnosis, and, thankfully, he wrote thisin my consult record. Iare twolinks that might be of some help.http://www.neurologyarticles.com/ There might be some really good info on the emedicine: http://www.emedicine.com/neuro/index.shtml#neuromuscular Here are good thougths going your way Isure hope the doctor will be able to find theproper treatment. Boy, enough is enough, eh? Let us know how you make out on Monday.

forgot to mention this [2007-10-20]
Two doctors said I possibly have a neuroma in the area where the neurosurgeon cut the C2 nerve root. They say it branches out like a tree root in my head but there is no test to show this. Crazy huh? MRI of C spine did not show it nor did CT scan of head. I really would like another MRI of my brain but cannot get one. Also having facial spasms and eye spasms and deep nerve pain in both ears. I am so scared. Anyway for fibro I learned from my fibro friends that it is important to take the magnesium separate from the calcium as the calcium builds up, does not bind with the magnesium,thus my bone spurs. Also I have big knuckles, another sign of calcium buildup in fibro and scaly scalp. We supposedly have too much phosphate in our body, thus a lot of fibros take the guiafenesin which releases it from our bodies. This excess phosphate causes the muscle spasms. Dr. St. Amand's book explains all of this. It can even cause spinal stenosis. We all need more magnesium, even as much as 2500 mg a day and to get our levels tested. Anyway enough said. I hope we all get better with something. I know I cannot go on like this.

Sorry, I somehow made a jump to fatigue and you didn't even mention that. [2007-08-20]

Saw this on Word Help Just Now sm [2008-08-12]
I copied it for ya: Posted By: Siren on 2008-08-12 In Reply to: Yes - Briana Subject: I am so sorry that I did not get back with you sooner. I was busy working and forgot to get back with you. This is the only thing I found when googling: DextroMorph™ is purported to treat opioid tolerance and to decrease the amount of morphine needed for a given analgesic effect, and is not purported to decrease the wanting, of morphine. I do not know if this helpful to you or not.

Crissy, I just posted about FBM..sm [2008-07-23]
I also forgot in my original post, i have been on Omega fatty acids for a long time, but it does not seem to be helping me. My doctor and the rheumatologist I saw, well, he told me that my doctor was doign a great job of treating me and there was really nothing he would do differently. My medication regimen for this awful thing: Cymbalta 60 mg once a day Percocet 10/650 mg 1 twice daily. Xanax 1 mg 3 times a day Lortab and Ultram for breakthru pain. I take other vitamins and I also take magnesium. As you can see, I am a walking dealer for a drug addict and i HATE IT....but I hate the pain more. Stretching exercises seem to help a GREAT deal and I do them a few times during the day. I also have a myspace page and I have met WONDERFUL people who suffer from FBM, joined support groups online as there aren Everyday, we send each others messages, we chat on IM, some of use even exchanged phone numbers. These gals are wonderful and some have other conditions in addition to FBM and they are the strongest women I know. If you would like to find out more about the groups I belong to, please feel free to email me. Good luck with everything. I know what you are going through.

Can somebody try and help me please? [2008-07-11]
Four weeks after my first child was born, in the middle of the night, I awoke with a very profound itching over my entire body. About a week later, after this having happened for so long, I realized it wasna lot of antibiotics), everything we could possibly think of. I made them run every test in the book, everything is clean. I have never had healthy problems before, and I was 20 y/o on onset of symtpoms. I have not had my thyroid checked yet though...which I know I should. Finally a doctor says that my only hope is to go to an allergist. I told him that somebody with skin that reacts to everything cannot get a skin scratch test, but he said they would do something. The allergist said it didnabout 3 months tops. It has been six...a totall of 2 years and 8 months. And since I started taking Zyrtec and feeling better, a new wierd bumpy itchy rash has started onmy legs...and the Zyrtec is becomming more ineffective, just like every antihistamine before it, and I am coupling with benadryl. The only other things I have noticed are bowel upset at times (soft stool, gas), some stomach upset from time to time....and I do notice a lot of stuffiness at times as well. I had never had allergy symptoms before in my life. So my question to you is this: Do I just assume the doctor was right, and I am allergic to the world...or do you think this is more like some kind ofautoimmune. I am literally at my wits end here. Although antihistamines help mostly, not always, and not fully. I need help! I have seen 5 doctors to date. It is not psychological, forgot to put that up there as well. And it is not scabies... I am the only one that I know of with this severe itching and welting. Oh, and no hives show up until my skin is touched, and I do have skin-writing...but I thought dermatographia only itches after touching, not before. So, if you can think of anything else that I could try, or have any ideas for what it could be, please help me!

Not interested or understanding [2008-05-19]
I don't have MS, but I certainly can relate to being left and with no one being interested in learning about the disease process. In 2001, I had a hysterectomy, cystocele and rectocele repair and bladder suspension, and my boyfriend of six years decided that three days before my surgery would be a good time to leave. I think it was the emotional loss (as well as the monetary loss since he contributed to the bills) that hurt the most. Fortunately for me, I had two great friends and an aunt who had keys to my house and would stop over all the time to see if I was okay. (I felt okay, but stupid little things, like removing an ice cube tray from the freezer, were difficult in the beginning.) So I can relate to being abandoned and the hurt it can create on so many different levels. I I live with my daughter now, 2,500 miles from my home, where I was born and raised. (Ironically, she takes Provigil herself!) Now that I She has called me lazy during some of her angrier moments, which hurts more than I can express in words and just adds to my own sense of worthlessness. She Every now and then, I do mention something in the form of a what my body joke (for example, when goofy or weird things happen with my body, I look to see if these are components of CF, and nine times out of ten, they are.) It however, I Maybe holding someone you love at arm's length and acting aloof is their way of preventing the emotional pain they might feel if they truly accepted the fact that you have a serious disease. (Or, as in the case of my boyfriend, they're just plain creeps!) My daughter and I did have a discussion regarding my death just last week. (At this point, IMe, since I think it Many posters on this board are married and not alone, but for those who are alone with no life insurance, please read my P.S. post above.) I personally am grateful for boards like this because sometimes, it's the only outlet we have to just vent or to ask questions. I know there are CF and Pancreatitis boards on the internet. I've learned quite a few things from reading posts on these boards, and I've found that finding a community of people with the same disease is very helpful because they DO understand the disease process and what you're going through. I wish good luck and the very best of health to both of you. I will keep you in my prayers.

Got it at a health food store [2008-02-23]
but not 100% but better than the acute pain- I do alright at night (thank goodness) when I can lie completely flat but working 8 hrs a day sometimes is harsh on my ribs. I went back to the pain clinic and only got 4 days of pain with the last thoracic injection, when they said well lets try again- told them no, just give me something for acute pain- most everything else I have tried is really not doing any good. Have a new internist's appointment the first of next month. I wish something or someone could help me! Pain every day is no fun.

Fibromyalgia folks also and Mary, got the email about injection [2008-02-14]
I went back to pain clinic the first of this week- the other thoracic lasted for, ahh, 4 days- and the PA said well we should repeat and I said no, have turned down all hard medications before and now I said want Lortab for really bad pain - they monitor and I only take 1/2 tablet if needed. Now having said this, let me tell you what I found out about a health food store item called Ribose- I started taking nearly 2 weeks ago now and so far so good- read an article saying how much it had helped person's fibro- I gave it a chance. I will continue to stay on it as long as out of that excruciating pain.

Why are you worrying? [2008-01-21]
Am having an thoracic ESI done Monday after next and have had 2 previous ones but not thoracic- may have been cervical- going to pain clinic and they are NO big deal, in fact the first 1 I had done thought the injections still to be done and the physician was finished. The first gave loads of pain, the second not but another physician said not getting the right spot and ordered thoracic ones instead. After the injections I was given some heat/massage therapy for awhile and things really felt good. I do not think you have a reason to worry at all. Let us know how things turn out, ok?

It was not a problem in any way. [2008-01-21]
I could have worked the same day but I have found out supposed to rest for 24 hours? Hmmm, don’t think I was told that at first but have them done on my off day (Monday) so not a problem here. At the pain clinic they gave me maybe Versed, fentanyl combination ? but nothing absolutely to make you the least bit drowsy, not for me at least. I guess that is for the nerves, if you have some. I did not know the first ones done, that will tell you something, the second I felt more what I call pressure with it. I have thoracic coming up and no qualms about having that 1 done. Piece of cake. If something can give me relief, I am all for it and hopefully you can get some. Let us know afterwards, ok?

Maybe research this.. [2008-01-16]
I had muscle issues and read somewhere that after doing activity, you shouldn't immediately apply heat. I was always taking warm showers after activity because it felt good at the time, but read somewhere that you shouldn't do that - it somehow damages the muscle more. I'm not sure if that would apply in cases of fibro, but may be worth asking/researching. (only thought this because you mention the jacuzzi) I think the dance class is an excellent idea. Good luck!!

? Thoracic Outlet Syndrome, ? Neurontin [2008-01-11]
At one time it was thought that I had a left-sided thoracic outlet syndrome. Comes to find out, I have a left ulnar neuropathy. My pain originated in the upper part of my left arm andI had a lot of pain in my elbow. This pain then went down the outside of my arm to my little finger and ring finger Also, my little finger and the outside of my ring finger were numb but painful. (yup, it can happen at once!!) And, cold!! Holy cow, both my hands were cold!!! My left hand was sooo very cold, especially when cleaningsnow off my car or ice off the windshield. Other symptoms I had/have aredecreased hand grip in left handand muscle wasting. Has your doc prescribed Neurontin or Lyrica? Neurontinhas helped me tremendously. Mary, I rememberthe way I was treated...here I could walk OK, didnThe person who brought itall together for me was my neurologist...he believed me. He said that the symptoms I was experiencing was normalfor a person with my diagnosis, and, thankfully, he wrote thisin my consult record. Iare twolinks that might be of some help.http://www.neurologyarticles.com/ There might be some really good info on the emedicine: http://www.emedicine.com/neuro/index.shtml#neuromuscular Here are good thougths going your way Isure hope the doctor will be able to find theproper treatment. Boy, enough is enough, eh? Let us know how you make out on Monday.

Have you tried Neurontin, or could it be [2008-01-11]
thoracic outlet syndrome? At one time it was thought that I had a left-sided thoracic outlet syndrome. Comes to find out, I have a left ulnar neuropathy. My pain originated in the upper part of my left arm andI had a lot of pain in my elbow. This pain then went down the outside of my arm to my little finger and ring finger Also, my little finger and the outside of my ring finger were numb but painful. (yup, it can happen at once!!) And, cold!! Holy cow, both my hands were cold!!! My left hand was sooo very cold, especially when cleaningsnow off my car or ice off the windshield. Other symptoms I had/have aredecreased hand grip in left handand muscle wasting. Has your doc prescribed Neurontin or Lyrica? Neurontinhas helped me tremendously. Mary, I rememberthe way I was treated...here I could walk OK, didnThe person who brought itall together for me was my neurologist...he believed me. He said that the symptoms I was experiencing was normalfor a person with my diagnosis, and, thankfully, he wrote thisin my consult record. Iare twolinks that might be of some help.http://www.neurologyarticles.com/ There might be some really good info on the emedicine: http://www.emedicine.com/neuro/index.shtml#neuromuscular Here are good thougths going your way Isure hope the doctor will be able to find theproper treatment. Boy, enough is enough, eh? Let us know how you make out on Monday.

No, have not waited to see anyone [2007-11-04]
I have been sent from this 1 to that 1 WITHOUT any assistance. My primary care physician sent me to rheumatologist- did brief exam, gave Lyrica, not told to come back, just call, went to a pain clinic where I ASKED before going - do you treat fibromyalgia and told yes -then looked at like I had 2 heads- they did nothing- told me they call me to give follow up?? This was new to me. In my leisure time- ha - I have gone to have dental implants with grafting of bone, had MRI for kidney cysts that I have, then go to endocrinologist for thyroid problem- then almost forgot the podiastrist for fungus and then I have to have outside lab work done for the podiastrist, endocrinologist- plus work - as you can see I have had so much time on my hands having to buy some more bon-bons and get new file for my nails.

The trigger point test for fibro [2007-08-20]
is the only one I know of. The docs can poke and prod all day long and it doesn't hurt, but make me walk around the block and I'm in agony. I should also mention that I used to be pretty active - went to the gym and stuff. I don't think there is a test for CFS and I'm a little afraid that is what the doctors are going to say I have since they can't find anything else. I am currently taking classes at the local college and am having a horrible time trying to get them to understand that I can't physically get to campus. With all the controversy about CFS, I'm afraid that would make the fight even harder. Thanks for the reply. :)

Vitamin D sm [2007-08-20]
Duh...I just remembered this. My sister who has fibro and for the last more than a year has been terribly fatigued. She finally got tested for and found out she was severely vitamin D deficient and they put her on a series of shots (I think) to bring it up. That said, the first round brought it up some but still deficient and they forgot to tell her to take calcium, the second round I believe did little good, and she is still waiting to see what Her fatigue is a little better but still debilitating. Have they checked your vitamin D levels??

Had chest pain, too [2007-08-14]
I went to the ER one night when I had chest pain (the first). I have had fibro for almost 15 years. The doctor sat at the end of the gurney and said you are having a coronary spasm - and he kept me overnight for observation. A few months later I was in the hospital visiting someone and decided to go and pick up my medical records. There was no mention of my fibro or a coronary spasm. The diagnosis was anxiety. Wonder why they pumped me full of nitro and hypertensive medications - but no ativan or xanax? I finally took my own antihypertensive that night to get my blood pressure down - obviously doctor's cannot be trusted anymore.

Provigil [2007-04-17]
Has anyone ever talked with their doctor about using Provigil for the fatigue, ect? Read a very interesting article about this being used in MS, FM and CFS patients? Think I may mention this to my doctor when I go in May

What about any other ideas regarding treatment? [2007-03-25]
I have been told by my previous supv that exercise helped a lot. She had to quit typing because of terrible leg, arm pains. I myself am bothered with it and it is not a fun thing at all. Saw my physician just this last week and I am signing up for water aerobics in the morning to start out- gosh I have not really exercised in so long but am willing to see if this will help me. I have been on a long flare since December this time and horrific! I take the glucosamine, got a cortisone shot this past week (it lasted all of a day in the pain relief), taking Medrol dosepak (cannot tell any difference with that, almost thru with it) and ibuprofen. Supposed to take an antidepressant at bedtime- gosh forgot that last night and right at the bedside. I have changed my work chair because I was having trouble just working so that has helped some. No one else in my family has this, do any of you have relations with it? I would not wish this on my worst enemy!!