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Omega fatty acids helped me a lot nm [2008-05-14]
best wishes to you :-)


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First off, Hello everyone.........sm [2008-07-23]
this is my first time on this board. I am 43 yrs old, suffer from fibromyalgia. I have had this pain for about 1-1/2 yrs but got officially diagnosed in September of 2007. I have been on narcotics, tried different types of meds like Lyrica (BAD side effects) Prozac, wellbutrin, neurontin (made me swell), Lortab, Xanax, Flexeril. Well, the Lortab and Flexeril helped at first, but Lortab does nothing for me, so my doc put me on Percocet 10 mg and I am still on Xanax. I was also started on Cymbalta (2nd day).....She told me to take it at bedtime, but I am WIDE AWAKE but she says this will wear off after a while. I had to quit a good paying job with health benefits because the stress of that job was making me have a nervous breakdown, I was hurting 3 x more than the normal pain and the company, well that is another story for another time. I have gone thru testing for lupus, MS, RA, etc.....I just got another job as an employee but still wondering IF I should take the insurance, which I probably will not as it is WAY too expensive. I am not even sure I will last at this job as an employee because shift work just does not work for me anymore. I am so tired of always being in pain, having to pop pills and feel like a druggie and I am so afraid I will get hooked. Well, I know this is long and if you read up to this point, thank you...I have started the application process for disability because this disorder has me in the poor house as I am unable to keep a job because of this. I know they may not approve me, OR if they do, it may take years.... Anyone with FBM, what do you do, what meds are you on, how do you cope without feeling like you just want to cry and scream and control the mood swings? I also take magnesium, fish oil, B vitamins.... I push myself just to sit at this computer to start working. The company I was hired with, they let me tell them what hours I preferred and of course, I chose hours to start later in the mornings (mid mornings). Upon awakening, it takes me a good 3 hours just to get myself together, I do my stretches, I take my meds, take a bath/shower, get dressed, fix hair, and put my makeup on. I try to do everything before all of this happened so that I can at least feel like my old normal self....but is is so hard. Please excuse the typos, I am now just getting groggy and will take advantage of that and hit the sack.

Crissy, I just posted about FBM..sm [2008-07-23]
I also forgot in my original post, i have been on Omega fatty acids for a long time, but it does not seem to be helping me. My doctor and the rheumatologist I saw, well, he told me that my doctor was doign a great job of treating me and there was really nothing he would do differently. My medication regimen for this awful thing: Cymbalta 60 mg once a day Percocet 10/650 mg 1 twice daily. Xanax 1 mg 3 times a day Lortab and Ultram for breakthru pain. I take other vitamins and I also take magnesium. As you can see, I am a walking dealer for a drug addict and i HATE IT....but I hate the pain more. Stretching exercises seem to help a GREAT deal and I do them a few times during the day. I also have a myspace page and I have met WONDERFUL people who suffer from FBM, joined support groups online as there aren Everyday, we send each others messages, we chat on IM, some of use even exchanged phone numbers. These gals are wonderful and some have other conditions in addition to FBM and they are the strongest women I know. If you would like to find out more about the groups I belong to, please feel free to email me. Good luck with everything. I know what you are going through.

Can somebody try and help me please? [2008-07-11]
Four weeks after my first child was born, in the middle of the night, I awoke with a very profound itching over my entire body. About a week later, after this having happened for so long, I realized it wasna lot of antibiotics), everything we could possibly think of. I made them run every test in the book, everything is clean. I have never had healthy problems before, and I was 20 y/o on onset of symtpoms. I have not had my thyroid checked yet though...which I know I should. Finally a doctor says that my only hope is to go to an allergist. I told him that somebody with skin that reacts to everything cannot get a skin scratch test, but he said they would do something. The allergist said it didnabout 3 months tops. It has been six...a totall of 2 years and 8 months. And since I started taking Zyrtec and feeling better, a new wierd bumpy itchy rash has started onmy legs...and the Zyrtec is becomming more ineffective, just like every antihistamine before it, and I am coupling with benadryl. The only other things I have noticed are bowel upset at times (soft stool, gas), some stomach upset from time to time....and I do notice a lot of stuffiness at times as well. I had never had allergy symptoms before in my life. So my question to you is this: Do I just assume the doctor was right, and I am allergic to the world...or do you think this is more like some kind ofautoimmune. I am literally at my wits end here. Although antihistamines help mostly, not always, and not fully. I need help! I have seen 5 doctors to date. It is not psychological, forgot to put that up there as well. And it is not scabies... I am the only one that I know of with this severe itching and welting. Oh, and no hives show up until my skin is touched, and I do have skin-writing...but I thought dermatographia only itches after touching, not before. So, if you can think of anything else that I could try, or have any ideas for what it could be, please help me!

P.S. [2008-05-19]
I just posted a response above in the MS thread. I began to describe a discussion that I had with my daughter last week about the issue of death. I didn This is for people who are basically alone, unmarried, and who have no access to life insurance. Its intent is to help anyone who finds himself/herself in that position. When I lost my health insurance, I also lost my life insurance, and I certainly can (I had had shared the below information with her before in a conversation, but apparently she had forgotten it.) Just in case anyone else out there finds himself/herself with a fatal disease and doesnMedCure to be a donor once I pass on. This is a company that uses human remains for medical research. They will pay ALL costs associated with removing my remains from my place of death, pay for a few death certificates for my family, cremate my remains and return them to my family (if that is what my family desires). This is ALL done for FREE -- doesn They gave me two cards: I keep one in my wallet and the other one in my special box with other important papers. If anyone out there finds himself/herself with no life insurance for whatever reason and cringes at the thought of their family being saddled with burial costs, this may be a suitable alternative for you. (I believe there are other companies out there, as well, that offer the same or similar package; MedCure is simply the one I chose.) I hope this information may be of help to someone.

see link [2008-05-14]
http://www.drlowe.com/nutrition/articles/omega-3%20and%20pain%20relief.htm

Need help with fibromyalgia. (sm) [2008-05-08]
Has anybody found a doctor that's helped much with fibromyalgia? Any good new updates on treatments or help to relieve the pain? Thanks.

Coconut oil - No I don't sell it :-) but want to share my experience (sm) [2008-03-21]
I have been ill for years with hepatitis C (though no symptoms from that), chronic fatigue, all-over body aches, borderline thyroid, overweight, acne, etc. I have started using coconut oil - there is tons about it on the internet - and in just one week I am feeling more energetic, my body pain is greatly improved, and my skin has significantly cleared up and my skin is far less dry. I have been taking about 2 tablespoons a day with different foods and using some of it directly on my skin. I bought it at a Whole Foods store here locally and paid $6 for the first jar which lasted me a week. It has helped me so much already that I wanted to share this info in case anyone else wants to try it. It is worth a try, right?? Best wishes to everyone.

Thank you, Janie. [2008-03-20]
Wow! I couldnprofessionals, at least the ones that seem to hold a monopoly on their respective practices in my town. I sure hope you have a different doctor now!! I will definitely investigate saline infusions! Thanks for the tip. As I I can also give credit where it's due, and after yesterday, believe me, it's DUE! I had an appointment with National Jewish Medical Center in Denver yesterday. This appointment lasted six hours, but I didn The entire experience moved like a well-oiled machine. They made my local hospital look like a butcher shop. As noted, I HAVE done a lot of research into this (especially pancreatitis), but it In my case, my lung disease is mild. It The doctor yesterday told me that eventually (probably in a few years) my pancreas pain will go away because my pancreas is basically cannibalizing itself. Once it finishes destroying itself, although Idead pancreas, I won I probably will develop diabetes, though. Unless I develop pancreatic cancer (or cancer somewhere else in my GI tract), though, he told me that my lung disease will definitely be the cause of my death. They gave me so much stuff yesterday, including a very nice book (hard-bound, no less), Now That I Have CF. The entire book is devoted to adult-diagnosed cystic fibrosis. National Jewish is THE place to go for this disease. This is their expertise. I had previously felt as if Iwolves and had lost all trust and respect for the medical professionals as a whole. My experience yesterday has restored my faith. They gave me prescriptions for a box (5) of Fentanyl patches, more Vicodin for the pain that isnhospital worthy, more Xanax for the incredible anxiety I have (I awake in the middle of the night, panick stricken, almost every night.) They re-began me on paroxetine at double the dose I had previously been on, feeling it might work better for me. They gave me an Acapella device to use daily that helps to get rid of the mucus. (I was surprised to find that the use of this device, as they directed, is exhausting! Now I understand why patients with cystic fibrosis are so tired as a result of the treatment they need to undergo.) They gave me an entire box of Creon sample bottles (pancreatic enzyme). They gave me samples of Qvar, Pulmicort, and two ProAir HFAs. They advised me to apply for Social Security disability, and I met with the social worker for a very long time. She also wants me to have my CICP (Colorado Indigent Care Program) case re-rated because she feels I'm paying too much now that my income has decreased so much. The only snag is that if I need to be admitted, they admit through a university hospital near them, again almost 80 miles from where I live. As it was, we had to rent a car yesterday to get there, so I don That A few weeks ago when i had a hospital-worthy attack, the two patches previously given to me by the hospital (which I saved) helped very much to get me through the attack. Only drawback is they take a while to get into your system, but once they do, they last for three days. So maybe these new patches will help prevent another hospital admission, as the others did. Iofficially in the CF register, and I've very eagerly agreed to participate in any research projects where they may need my help. I don

Fibromyalgia folks also and Mary, got the email about injection [2008-02-14]
I went back to pain clinic the first of this week- the other thoracic lasted for, ahh, 4 days- and the PA said well we should repeat and I said no, have turned down all hard medications before and now I said want Lortab for really bad pain - they monitor and I only take 1/2 tablet if needed. Now having said this, let me tell you what I found out about a health food store item called Ribose- I started taking nearly 2 weeks ago now and so far so good- read an article saying how much it had helped person's fibro- I gave it a chance. I will continue to stay on it as long as out of that excruciating pain.

? Thoracic Outlet Syndrome, ? Neurontin [2008-01-11]
At one time it was thought that I had a left-sided thoracic outlet syndrome. Comes to find out, I have a left ulnar neuropathy. My pain originated in the upper part of my left arm andI had a lot of pain in my elbow. This pain then went down the outside of my arm to my little finger and ring finger Also, my little finger and the outside of my ring finger were numb but painful. (yup, it can happen at once!!) And, cold!! Holy cow, both my hands were cold!!! My left hand was sooo very cold, especially when cleaningsnow off my car or ice off the windshield. Other symptoms I had/have aredecreased hand grip in left handand muscle wasting. Has your doc prescribed Neurontin or Lyrica? Neurontinhas helped me tremendously. Mary, I rememberthe way I was treated...here I could walk OK, didnThe person who brought itall together for me was my neurologist...he believed me. He said that the symptoms I was experiencing was normalfor a person with my diagnosis, and, thankfully, he wrote thisin my consult record. Iare twolinks that might be of some help.http://www.neurologyarticles.com/ There might be some really good info on the emedicine: http://www.emedicine.com/neuro/index.shtml#neuromuscular Here are good thougths going your way Isure hope the doctor will be able to find theproper treatment. Boy, enough is enough, eh? Let us know how you make out on Monday.

Have you tried Neurontin, or could it be [2008-01-11]
thoracic outlet syndrome? At one time it was thought that I had a left-sided thoracic outlet syndrome. Comes to find out, I have a left ulnar neuropathy. My pain originated in the upper part of my left arm andI had a lot of pain in my elbow. This pain then went down the outside of my arm to my little finger and ring finger Also, my little finger and the outside of my ring finger were numb but painful. (yup, it can happen at once!!) And, cold!! Holy cow, both my hands were cold!!! My left hand was sooo very cold, especially when cleaningsnow off my car or ice off the windshield. Other symptoms I had/have aredecreased hand grip in left handand muscle wasting. Has your doc prescribed Neurontin or Lyrica? Neurontinhas helped me tremendously. Mary, I rememberthe way I was treated...here I could walk OK, didnThe person who brought itall together for me was my neurologist...he believed me. He said that the symptoms I was experiencing was normalfor a person with my diagnosis, and, thankfully, he wrote thisin my consult record. Iare twolinks that might be of some help.http://www.neurologyarticles.com/ There might be some really good info on the emedicine: http://www.emedicine.com/neuro/index.shtml#neuromuscular Here are good thougths going your way Isure hope the doctor will be able to find theproper treatment. Boy, enough is enough, eh? Let us know how you make out on Monday.

They have been effective for many [2007-11-19]
people with migraines, and the effect is temporary. If the pain is caused by or if the pain causes muscle tightness of the head, they are likely to help. But then of course, I don't know what bad reactions certain people may have had to it - I have only heard about those who were helped.

Good MIL postings wanted, please SM [2007-11-02]
I am so sick and tired of we mothers-in-law being negatively portrayed on TV, in the movies, in magazines and gossip columns! Does anyone here have a good MIL who has helped you in some way? I think the media is making a ton of money by portraying us all as monster-in-law, and would like to hear some true stories of how people are helped by their husband Gosh, we canhis mother, in a derogatory way. When I look back now, she was just jealous that I had a new woman in my life. I should have been more open-minded. I think it's part of the status quo to hate having another woman in your life -= eternal strife? Not always, I hope. Can you think of ONE positive thing to say. Mine would be that my MIL taught me how to drive, albeit because she wanted me to get my kiesta out to work, but at least she taught me a bit of independence.

Head pain [2007-10-20]
I have not found anything that helps yet. Take valium and pain pills, cannot take Neurontin. I think it is either fibromyalgia or occipital neuralgia or both. I can hardly function too, cannot drive far because of the dizziness. My last MRI of my neck showed DDD and bone spurs. Nortriptyline at night helped but caused me heart palpitations. More magnesium helps.

Does warmth help? [2007-09-09]
I'm not sure I have fibro, but I get severe muscle pain. I was one big hurt last night, too. My little cat decided he wanted to lay on my lap (he is like a little mini-furnace) and the heat from him helped my leg muscles so much! Does heat help you at all? I bought an electric blanket for the all-over pain, but it doesn't work as well as my kitten!

These are things I tried yesterday [2007-09-09]
I got some cherry concentrate, mixed that with a little bit of water and drank that (helps gout), next hubs got me some vitamin D, took that (got email yesterday talking about lack of Vitamin D causing bone pain), took a new womens vitamin hubs said should be good, rubbed my upper torso with similar to Ben-Gay (was I smelly last night, home alone though so alright), slept in a thermal shirt and this morning have some relief. Now what if any of these helped?? Needless to say I repeated all the above this morning. I do not know if maybe the fibro decided to give me a half-way day off without excruciating pain or did any of the above work. I am open to all suggestions. As far as the heating suggestion above, I did buy and wear a cold-hot heating pad, helped some for about 2 days and then pain again. This is not fun!

One big ache tonight! [2007-09-08]
ever tried the really smelly cream like Ben-Gay or for muscle pain? I was hurting so much tonight went to a drug store where read on the internet they had some kind of spray on deal for the pain and seemed to work well. This was after 8 and only 1 person in the store so wound up getting the smelly stuff. I hate to rub that all over but for the most part used on my upper torso and arms because I hurt so bad I could scream!! I have been to several doctors and really do not know where to try next. My primary care physician did nothing, rheumatologist did nothing, can go back to pain clinic but would like to know if anything else going on because the rib pain is so severe you cannot palpate it without a big hurt. Have any of you tried and have the creams helped out any at all? Using this as stepping stone until maybe someone will assist me in relieving some of this horrific pain. Thanks!

I have thyroid problems and mitral valve [2007-08-14]
prolapse with dysautonomia. I battle anxiety as well. I also have palpitations. I always have normal thyroid blood studies. However, I went to a pharmacist that has helped me more than any doctor ever has with my MVP and thyroid problems with natural supplements. I have also had irregular periods since I was 15 and had a thyroid nodule pop up last year that was biopsied and normal yet still have normal blood levels of my thyroid. However, the pharmacist put my on natural supplements for my thyroid and all of the sudden I started having normal periods and have never had them off of birth control. I would keep trying to get to the bottom of all this, you are not crazy and it is not in your head. Good luck and God Bless!

I went to a reflexologist who has [2007-08-14]
given me Standard Process supplements. I have a friend with MS who has been helped tremendously with his treatment so I am excited and expect good things. Ask around fora reflexologist who uses Standard Process products. If you Google it, you will find more information. Good luck

I have MS and see a reflexologist for treatment. [2007-08-14]
The conventinal treatments weren I have always been interested in alternative medicine and have been helped tremendously by him. He prescribes Standard Process products. I am on Immuplex. I also tookone of the Spleen complexes for about 2 years but no longer need it.It changed my life. Ipay out of pocket for the visits and the supplements but my quality of life is worth it. He also took care of a hiatal hernia for me that I didn Resolved the heartburn and nausea from the get go and all symptoms disappeard over the course of a few days. I no longer take ANY meds forit. Sucking down medications that mask symptoms is not the answer. Search around and find what is out there. Conventional medicine cannot good luck to all.

My physician said [2007-04-10]
Good thing you were not diagnosed years ago, you would have been considered a hypochondriac but gosh had no clue anything wrong except just why was I so tender on my shoulders and sitting in a chair my furkid walked across my leg and that was just knife-like also. No one in the family had anything like this but again when diagnosed with hypothyroidism told if I had a daughter to tell her because hereditary? No 1 in my family with that. I am gonna have a DNA done, might be adopted!! Just kidding. I had a slight flare yesterday but like I stated, getting into the exercise for arthritics this week, if first class goes alright they have 2nd that day and might do that 1 also. I changed work chairs with hubby and that has helped my back a lot, the other 1 killed me. I do not live stressful life basically, happy home front, love my work, kids grown and out, my animals around so ??? I would never wish this on anyone. The flares are horrific like you know.

Oh I see... [2007-04-10]
glad that you I was just wondering because I have heard some say good things about their rheumatologist, others don Regardless I hope the water therapy works - I have a pool and as soon as it gets warm enough I'm gonna hop in there and do some exercises too - the walking has helped a lot - though at first I was even more tired afterwards, but it's getting better. Good Luck!

fibro [2007-04-02]
my antidepressant is Zoloft 100 mg at bedtime. The rheumatologist put me on NSAIDs (Relafen 1500 mg) in January and although some think that the steroids do not help I found that they helped a great deal - especially the pain I was feeling over my hip area when I laid on my side or rolled over, etc - while it did not make the pain go completely away - the tenderness I felt diminished a great deal - I tend to think that everyone responds to different medications, treatment, etc - it seems that the treatment plan for each person differs like the symptoms differ from person to person. He also put me on Neurontin back in February to help with the tingling feeling I was having in my feet and hands -which has helped. I'm still in the beginning stages of fibro - so I'm sure my symptoms will change/intensify as time goes by. I have, however,felt great the last 3-4 days thank goodness - hope it last for a while (I know wishful thinking! - but hey a girl's gotta dream LOL!)...I too have cut down on my sugar and caffeine. Do you have muscle spasms? Lyrica was something he said I could try if the Neurontin didn't work for me - but the Lyrica is rather expensive and not the preferred drug on my insurance right now - so I opted for the Neurontin it so far so good - and I've not gained the weight that some people did - so maybe I'll be okay for a while on this med. Well I need to go sign on to work - I hope you and all the other fibro sufferers have a great week!!!

What about any other ideas regarding treatment? [2007-03-25]
I have been told by my previous supv that exercise helped a lot. She had to quit typing because of terrible leg, arm pains. I myself am bothered with it and it is not a fun thing at all. Saw my physician just this last week and I am signing up for water aerobics in the morning to start out- gosh I have not really exercised in so long but am willing to see if this will help me. I have been on a long flare since December this time and horrific! I take the glucosamine, got a cortisone shot this past week (it lasted all of a day in the pain relief), taking Medrol dosepak (cannot tell any difference with that, almost thru with it) and ibuprofen. Supposed to take an antidepressant at bedtime- gosh forgot that last night and right at the bedside. I have changed my work chair because I was having trouble just working so that has helped some. No one else in my family has this, do any of you have relations with it? I would not wish this on my worst enemy!!



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