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Coconut oil - No I don't sell it :-) but want to share my experience (sm) [2008-03-21]
I have been ill for years with hepatitis C (though no symptoms from that), chronic fatigue, all-over body aches, borderline thyroid, overweight, acne, etc. I have started using coconut oil - there is tons about it on the internet - and in just one week I am feeling more energetic, my body pain is greatly improved, and my skin has significantly cleared up and my skin is far less dry. I have been taking about 2 tablespoons a day with different foods and using some of it directly on my skin. I bought it at a Whole Foods store here locally and paid $6 for the first jar which lasted me a week. It has helped me so much already that I wanted to share this info in case anyone else wants to try it. It is worth a try, right?? Best wishes to everyone.
I don't sell anything [2008-02-17]
I don't sell anything - just trying to help.
do you sell Amway too?????? [2008-02-15]
f
Anyone know a taper schedule for Vicodin? [2008-08-10]
I know, no medical advice formally being asked, but does anyone know any taper schedule? They used to be on the internet, but now when I search, I keep getting directed to horrible sites that sell Lortab and get emails of spam now for Vicodin, etc. Been on Vicodin for 10 years, trigeminal neuralgia, chronic pain syndrome, and have been on four Vicodin ES a day the whole time. I am sick to death of going to this skanky pain clinic in our county. Scum of the earth there, people dealing in the waiting room and parking lot, and never see a doctor, just NPs who think they are doctors, and just hand out scrips. They never go over anything on ourconditions, tho they are supposed to - they just hand out scrips. They have me on so many drugs by now, which is part of the game - you have to take the crap they hand out or you get kicked out of the program. I am supposed to be on Ambien-CR, Xanax, Esgic, and the Vicodin ES. My primary said that combo would kill me, and I know it would. The insurance company even said it would kill me, so I never ever even filled the Xanax. Xanax 2 mg four times a day, by the way. Can you imagine? They told me I had to be on an antidepressant, a sleeping med and then a pain med. I told them I would no way take an antidepressant, as never was depressed. So they said I had to have anxiety then. At any rate, I had a urine test the other day for compliance, and I tested negative for Ambien and Xanax, if you can believe this. I never take Xanax, but I take Ambien-CR every single night. This ignorant NP also said I was in trouble as I tested positive for barbiturates, which I had to explain to her was the Esgic (they want me to take 4 a day, which is considered a lethal amount). I only take it prn and happened to need it the day before I got tested, and thisunqualified NPtold me I tested NEGATIVE for Vicodin, as my urine showed hydromorphone and NO hydrocodone. Well, Vicodin metabolite IS hydromorphone, and I had to try to explain that. She said I must have a huge -- stash -- of Vicodin at home, as my urine showed nothing about Vicodin. I thought I was on Candid Camera or something. I am really polite and never lost my temper, though I would have been justified. She was so frustrated with me that she told me I had to find another doctor. I then lost my temper and told her what I felt of this candy doctor, who is never around, as that is all he is, and how ignorant she is. Bottom line, I got 100 Vicodin from her when I swore Iincorrect medical testing interpretation, i.e. stupidity. I asked her for a weaning schedule, and she DIDN So, I want to get off of it, but not sure of a wean schedule. Thanks for listening. I donI think II hope someone understands, and please, please, please don I am just heartbroken over this and so scared, as I went thru severe withdrawal about 8 years ago, literally doubled over on the floor with stomach pains and vomiting. I have never been on more than 4 a day. Its so weird, but I get so sick, like watching junkies on a heroin movie. The withdrawalwas another time long ago when I got humiliated picking up a scrip from a pharmacy in my new town. They were snickering and laughing about how some moms supplemented their income by selling Vikes. I had no idea what they were talking about til later, and then I cried and cried, flushed the pills, and died for about a week. At any rate, I am so scared of being sick like that, don Thanks for any help. Thanks for listening. My DH, by the way, is beyond furious and wants me to go to a lawyer over this, the NP not knowing that hydromorphone is hydrocodone metabolized in the urine, claiming I was on barbiturates, when she was the one who prescribes Esgic and didnThis witch NP also told me she would give me a good referral at another pain clinic, not to worry, but I do NOT want to go thru this anymore. Sorry for carrying on so long.
I don't sell anything [2008-02-17]
I don't sell anything - just trying to help.
autoimmune disorders [2008-01-29]
I would suggest you drink either Reliv vitamins or a product called Body Balance. I do not sell these but drink them myself. Both are excellent products to keep your immmune system at its best and much better than taking pills. You have to get these from distributors. Body Balance is glyconutrients and Aloe Vera from sea vegetables and contains every vitamin your body needs. Reliv is a powder and also contains every vitamin your body needs. You can check these out at Reliv.com or Body Balance.com to learn more. Hope this helps.
Tell me you are not paying for this? [2007-04-24]
Please tell me you are not subscribing and paying for that fibromyalgia coalition newletter? I'm not trying to offend you by saying this, so please don't take it that way, but from your questions you sound very new to FMS to me. Are you? Generally, when people are first dx'd or have very limited/mild FMS, they ask questions about alternative therapies, etc. as that's usually the first thing people do when they are diagnosed is try to find something/anything that may help and will be sucked into things like the fibro coalition that offer cures or illness reversals which are impossible! Don't get me wrong, I'm not calling you ignorant or bad or anything negative for wanting to find something that will help. I think it's very important to research any illness you have, but you have to be very careful, especially with something like FMS since there are so many people out there misdiagnosed because they have an occasional ache/pain, and soem doctor wants to label them with a disease (when they actually don't have FMS at all), so sure a supplement might cure something they never had!More importantly, there are many, many people out there preying on the people who really do have FMS and are in pain and desperate! Most of these institutes/websites/treatmentcenters, etc, if you really look, have hidden agendas, such as selling supplements, tapes, books, etc., all of which for the most part any way, are useless and a waste of money!
The fibro coalition is a waste of money and a waste of your time and effort reading it! It is full of misinformation and really nothing but hype about reversing FMS, treating root causes, etc. They have multiple sponsers that give them money to advertise on their site as well, all of which are preying upon sick people trying to sell supplements, books, CDs, etc to cure and/or treat FMS.
Supplements do not cure or treat FMS to any significant degree. Sure things like calcium and magnesium help with bone strength and muscle cramping, and obviously vitamins do not hurt you and are good for you. However, again, these do not cure anything other than a vitamin deficiency. If someone truly has FMS, a special blend of vitamins and minerals in an expensive, pretty package is not going to take away the pain, fatigue, etc. or cure FMS. It's just going to empty your wallet! I do take a few specific vitamins (not to cure or treat my FMS but calcium as any woman should probably take this, as well as a multivamin, again as most people with any illness or even healthy people usually take). Also, if I'm getting specific cramping, I may take magnesium as that does help. However, any of these specific vitamins can be bought at Walmart or a drug store seperately for much cheaper, and you can pick and choose what you feel is right for you without being called some kind of fibro cure/treatment, tripling the cost!
As somone who has had incredibly severe FMS for years, I'm just trying to warn someone who is new to this. In the beginning, especially since I had/have it so severe at a very young age (dxd in early 20s and 30 now), I tried everything and wanted so badly to believe all of the false hope and promises by some of these people! I researched everything and would latch onto any little hope these quacks would give me, trying every new mineral, vitamin, and worthless treatment a doctor would recommend. All this did was waste money, time, and effort until I finally realized that these people are just trying to get rich.
I have now just faced the facts that there is no cure/reversal, and I control the symptoms the best I can. I'm not like most of you unfortunately. I do not have flares and periods where there is any type of remission at all. I have constant, severe pain 24/7/365, and also different from most of you is that it is progressing as the years go by. At my relatively young age, I have not known a pain free day in over 10 years, not a single one. I've become a 30 year old stuck in the body of a 90 year old. I have days I'm hardle able to walk and am now about 75% limited in all activities, and this is on chronic opiate therapy of a 50-mcg fentanyl patch, along with anywhere from six to ten 5-mg OxyIR tablets, and a multitude of different muscle relaxants each day. Without the meds I'd be unable to do the limited things I can do and would be climbing the walls/suicidal with the pain.
I hope I did not offend anyone here and apologize for the rambling. It just really upsets me to see someone giving any money, support, or attention in any way to these organizations. companies, etc. like this. that are selling and advertising false hope and sending out misinformation to whoever signs up for it! Itnonsick public who are just trying to help themselves or their families/friends to feel better. So, please just be very careful who you deal with and what you waste your money/effort on for your own financial and emotional health. I'd take financial devastation over dashed hope any day.
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