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Fibromyalgia versus the above MS

Posted By: KittyC on 2007-01-06
In Reply to: try going sugar free if you can - sm - just me

I know mine not as bad and really feel for the MS sufferer. I do not eat much sugar on a day to day basis, half teaspoon with first cup of coffee to get me started but not a real big protein eater either. I do not want to take a lot of ibuprofen if I can help although I did take 3 tablets upon waking this morning because of the sore all over feeling. Ibuprofen is really hard on your kidneys. I had pasta today that hubby fixed but will try on cutting back on the "whites." Is this something you heard or just something you tried? I am open to all suggestions what others have done to help their fibro. Again, thanks!


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Do you have fibromyalgia and if so
are you able to get any relief at all from it? I was diagnosed about 2-3 years ago and it seems to flare. This morning when I woke I felt like every bone in my body was sore. Earlier I took a half tablet of a pain pill but I do not want to zonk out on anything as I want to work and don't need that, just needed some relief as just sitting in my work chair feel like my spine was right up against the chair. What, if any, things do any of you do for the pain, soreness, etc., etc. I know you probably know this is considered "all in your head" by some physicians but I gosh darn didn't even know I had something until my bones ached and when the rheumatologist ran fingers up my spine as I jumped off the exam table, told me then. When I awake, even if early, have to get up as too uncomfortable to just lie there in the bed. TIA.
Fibromyalgia

I have had it for 25 years and it gets worse all the time.  The only time it didn't bother me was when I was pregnant (4 times!).  I feel like I have the flu all the time and I am tired and exhausted.  I also have arthritis and have had a hip replacement and need the other hip replaced now and I have degenerative disc disease and need spinal fusion.  It never goes away -- ever.  Stress doesn't matter and not being stressed doesn't change anything.  A lot of drs. think it is "all in your head" and many have told me that.  Some put me on antidepressants which helped the burning sensation a lot, but made me gain 50 pounds.   Sorry to hear you have fibro---it is very debilitating.  I work in downtown Chicago and have to walk 11 blocks from the train to work -- it is very hard.  I had my first hip replaced when I was 43 -- very, very unusually young. 


 


 


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Wondering how many others here have fibromyalgia or similar illnesses and what your coping mechanism is?  Recently diagnosed in January of thisyear? Finding it difficult emotionally/mentally to accept that one day I may feel great and then the very next day I'm laid up in bed - completely exhausted, hurting, etc...I know gotta get a grip on it - think positive - behavior modification - but it's still difficult at times - guess I'm just venting a bit and curious as to others here.
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Unfortunately, I'm part of this club too. I can relate to what you are saying. I also feel completely emotionally/mentally exhausted at times. I just deal with it the best that I can and push myself to try to get beyond the pain. I have to care for a small child and my husband has a disability, so it is me or nothing. I wish I had more great days. During that time of the month I could just die. That is the worst for me.
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While transcribing a report recently I came across a website that discussed somatization disorder with regards to fibromyalgia and CFS.  I just did a Google on somatization disorder and it was the first website that came up.  It was very enlightening and I definitely going to check out my medical records and physician dictations to see if I have ever been classified as having somatization disorder when in fact I have fibro and CFS.  These are very different disorders, but fibro/CFS can be missed if a doctor is not well-versed in all 3 disorders.  I hate it thought that many doctors do not want to be forthcoming with your medical records - I have run into that more than once.  Well, I'm on a mission now -


fibromyalgia
I have this as well. Have had for years on top of osteodegenerative arthritis. For years the docs thought is was only arthritis (have had several implants in both hands.. All of the specialists I have gone to do not believe fibro is real illness. One had the nerve to tell me I was pain seeking. I was so angry.. Told him to do drug tests and whatever he wanted, but I was sick of the pain. My pain is located in my ribs and goes all the way around like at my bra-line (as if I were wearing one that is too tight).My BP went up because of it too.. Hurts all the time. Finally, my (really old old GP doc) whom I love told me that they have no real proof of this problem and a lot of docs don't want to deal with it. He put me on vicodin 1 a day. He told me to break in half and use it twice a day (1 pill) which I do. Although it doesn't stop it naturally, it does help me and I can work. He believes me and knows I don't abuse or over use.
My husband has fibromyalgia
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Fibromyalgia, meant to say
in the above post. Thanks again.
fibromyalgia/Lyrica
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I know the dx of fibromyalgia is very skeptical.  All I know is I feel like I have been run over by a truck.  My joints are killing me in my hips, knees and ankles.  They are constantly popping and cracking.  My neck muscles are constantly sore to the point where I cannot hardly move my neck.  I even had 1 bout where all my muscles in my neck, down to my scapula and left arm locked up.  I have very little use of my left arm with lifting because of pain in my left shoulder.  Sometimes I feel like my body is misaligned. 


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Hi. I would like to know if there are other MTs around that have fibromyalgia, and if so, I could use some tips on working with it, especially during a flare. I was so miserable yesterday I had to quit early. Better today, but still not great. I'd love to hear from others in my situation. Thanks.
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I know a lady who was just diagnosed with fibromyalgia.  She has been suffering for well over a year and now almost two years.  She has yet to break the pain cycle and feels that nothing will help her.  She currently spends most of her time in bed. 


I just wanted to know if there were any tips or treatments that have worked for people with fibromyalgia that might help her too.  So any information, books, etc. that you are willing to share would be much appreciated.  Thanks in advance!!!


Need some advice on this fibromyalgia deal

I am working and have already taken a half tablet of Oxycodone- do not want to be out of my gourd trying to work today. My back just up against the work chairs feels terrible, the ribs really hurt and I have some weight on me, gosh if I were skinny I would really be in trouble. Any advice out there as to how to sit here for 8 hours with pain?? Thanks


Have fibromyalgia and wondering if connection with

eating bread, things like Stromboli or pizza could aggravate this. I would have put this post on the immunosuppression board but not many seem to visit there. I was doing ok, taking some Lyrica which seems to have blocked a lot of the intense pain I have had and the other day ate some Stromboli and the rest of the day was very, very achy for me. Are there persons out here who might have some information on this, maybe working with people who have this or others who might have picked up information that can pass some on to me. I really, really love Italian food but I would pass on the bread ladened parts if that is what is causing the majority of the pain I have. TIA


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I am an MT looking to purchase a new computer, and it seems like unless you special order all the computers have Vista on them.  How is Vista compared to XP?  The companies I work for do support Vista, but I have heard more negative comments about Vista as opposed to good from people I know who use Vista who are not MTs.  I am hoping that this will be a smooth transition for me  as I am not that computer savvy.


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Fibromyalgia/chronic fatigue - I had it for 7 years (sm)
Started at about 27. If they rule everything else out, that might be what you end up being diagnosed with. I have a tendency to go on and on about this because I tried so many things over the years, so I'll try not to do that right now :-). My first question would have to be "Do you get good sleep?" If not, please Google the effects of long-term sleep deprivation - I had ALWAYS been a poor sleeper, sort of anxious person. Long term DEEP sleep deprivation causes the exact same symptoms as fibromyalgia and chronic fatigue and other chronic illnesses because your body does not ever get a chance to completely repair itself. If DEEP sleep is an issue for you - that is a great place to start - get a good prescription sleep med and don't be afraid to use it! Over the period of a year of using sleep med and getting good sleep I noticed myself getting gradually better and better.
a verb (versus a noun).............nm

pleasure versus happiness
Pleasure pertains to the senses.  For instance, it is pleasurable to eat something you like.  Happiness is a state of being which may or may not involve the senses, as in desires fulfilled.  For example, it was a pleasure to eat the chocolate cake.  I'd be happy if I could have the pleasure of doing it every day. 
Britney versus paparazzi . . .
http://www.bestweekever.tv/

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Guns versus doctors

Doctors


   (A) The number of physicians in the U.S. is 700,000.


   (B) Accidental deaths caused by Physicians per year are 120,000.


   (C) Accidental deaths per physician is 0.171.


Statistics courtesy of U.S. Dept of Health Human Services



Now think about this:



Guns


  (A) The number of gun owners in the U.S. is 80,000,000. (Yes, that's 80 million)


  (B) The number of accidental gun deaths per year, all age groups, is 1,500.


  (C) The number of accidental deaths per gun owner .000188.



Statistics courtesy of FBI



So, statistically, doctors are approximately 9,000 times more dangerous than gun owners.


Remember, 'Guns don't kill people, doctors do.'



FACT: NOT EVERYONE HAS A GUN, BUT ALMOST EVERYONE HAS AT LEAST ONE DOCTOR.



Please alert your friends to this alarming threat. We must ban doctors before this gets completely out of hand!!!!!


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In your experience, ladies and gentlemen, who is happier?  Skinny people who are afraid of a calorie/carb/fat gram?  Or plump, curvy individuals? 


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So what do you all think? 


HC.


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He may be....but $300 pool versus a $30,000 truck, and a boat, etc., etc.? nm
x
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Is it just me or how many others out their would like to throttle Billy Mays.  I am soooooo sick of him.  He's loud, obnoxious, and I'm getting tired of him thrusting his arms out in front every other second.  And please someone tell him to stop using the grecian formula.  It looks very unnatural.  I will never ever buy a product he advertises.


The shamwow guy though.  Now he's very enjoyable to watch and I will probably buy anything he advertises.  Just a nice switch from watching that obnoxious a$$ BM (gee his initials match what I want to have every time I see him).


Just wondered if anyone out there is as irked as me at Mr. Billy Mays.


My husband and I were deciding on a tubal versus a vasectomy....
after reading these responses about a tubal I told him he has to get a vasectomy....thanks for making my decision easier--I honestly never knew about menstrual issues afterwards...
Community living versus single-family dwelling

I was raised in a large single-family home, although it was on a cul-de-sac and there were no other girls my age in the neighborhhood.  That was okay for me at the time because I was a tomboy (and because that was decades ago!).  I didn't attend school with the kids on my street.  I went to a private school where my mom was a teacher.


Now, I am raising my granddaughter in an apartment community (I was already in an apartment when she came to live with me).  Because of my financial situation and the area in which I live and the schools I want her to attend, there is no possible way for me to purchase a home for the two of us.  My own kids lived in a single-family neighborhood before my divorce, then lived in a mobile home (double-wide trailer...common in these parts of the woods). 


I have so many conflicts about how children feel about the type of living arrangements they have, i.e., a _real house_ versus an apartment complex versus a mobile home community.  Personally, I would rather rent an apartment and not be responsible for reparis, but that means a constant turnover of other kids for my GD to relate to, which is also the situation in an apartment complex.  I don't want to buy a mobile home - which is what I qualify for grants, subsidies and low-interest loans in this area - so she can go to a better school.  Would this cause her to be more shame in her personal relationships with other kids at school than a mobile home community??


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Can anyone offer advice or experiences about growing up in a multi-family community such as an apartment complex...mobile homes (I know how my own kids felt about it now in hindsight)..versus a condo/townhome or single-family home?  I have some time to try to put things together before she starts school, so I am trying to decide what the best course of action for her sake.  If I decide to move, it will be to plant roots for the two of us for a long time, so I want to try to make the best decision possible.


Thanks for any input!


Anyone that has a GE washer top load that has any comments on GE versus Whirlpool top load. nm
:
Slow-Mohs versus regular Mohs
I am a patient, not a doctor, but my understanding is this:

A regular Mohs procedure takes many hours but is finished the same day you start the procedure. The doctor cuts out the visible tumor, then makes either vertical or horizontal slices from what she has removed. Those slices are made into frozen slides (not literally frozen) and analyzed by the doctor while the patient waits in the office. This allows the doctor to "map" the tumor. If a part of a slide doesn't show a clear (tumor-free) margin, the patient is called back in to a little more tissue removed. Again, that tissue is made into frozen slides and the doctor looks for clear margins. The patient will keep being called back in to have more removed until all the slides show clear margins. This can take many hours, but once the margins are clear, the wound is closed and that is the end of it.

Slow-Mohs is when the wound is left open for a day or two (and up to a week) while the slides are analyzed. That is why it is called "slow" (the time you spend in the office on the first day of surgery should be about the same as if you had regular Mohs). The reason it takes so much longer to analyze the slow-Mohs slides is because the doctor uses paraffin-embedded slides instead of frozen slides. Paraffin-embedded slides are of much higher quality than frozen (my doctor said it's the difference between a huge HD TV and an old black and white TV with bunny-ear antennas).

For most of the malignant tumors treated by Mohs, frozen slides (and thus regular Mohs) is sufficient. But there are some types of tumors that have long, finger-like extensions (like roots) that are hard to see on frozen slides. If they are removed with regular Mohs than these roots could be missed and lead to a recurrance of the tumor. So that is when Slow-Mohs is usually used.

Sometimes Slow-Mohs is called Modified Mohs, but I have also heard Modified Mohs refer to a regular Mohs procedure with other variations. So if a doctor says they are going to do Modified Mohs, ask them exactly what they mean by that.

You should also ask if your doctor will be using vertical (bread-loafing) slices, or horizontal slices. I think vertical is the norm, but horizontal is better for tumors with irregular boarders.

Also, sometimes after doing regular Mohs with frozen slides, the doctor will take a final slice for paraffin-embedded slides to be analyzed just in case. This final paraffin-embedded slide isn't the same as Slow-Mohs. In the rare instance that the final slide comes back with a positive margin, the patient will be brought back in for another Mohs procedure, but usually regular Mohs is a one-day affair.

Overall, Mohs and Slow-Mohs are a great alternative to a wide surgical excision that could result in greater (and unnessesary) tissue loss. I think it is widely accepted for skin cancers, but more controvertial in other cancers like sarcomas.

I have a very rare sarcoma called Dermatofibrosarcoma protuberans (DFSP) and while most of the literature I read says Mohs is at least equal to or better than wide excision (but with less tissue loss), I have seen 2 sarcoma specialists that are strongly opposed to Mohs for DFSP. However, their reasons are that vertical slices and frozen slides are inadequate for DFSP. However, it doesn't seem like they are aware of the horizontal slicing options and the ability to do paraffin-embedded slides in Slow-Mohs (and doctors don't respond well to any implication that there is something they don't know). So I am trying to arm myself with as much knowledge as possible...and I suggest you do the same if you have one of the more controversial tumors.

Here is a good (technical) article about Mohs and DFSP that describes the different types of Mohs:
"Modified Mohs Micrographic Surgery in the Therapy of
Dermatofibrosarcoma Protuberans: Analysis of 22 Patients" http://www.annalssurgicaloncology.org/cgi/reprint/11/4/438