Fibromyalgia
Posted By: typingforpennies on 2007-03-06
In Reply to: Fibromyalgia? - Stephanie
Unfortunately, I'm part of this club too. I can relate to what you are saying. I also feel completely emotionally/mentally exhausted at times. I just deal with it the best that I can and push myself to try to get beyond the pain. I have to care for a small child and my husband has a disability, so it is me or nothing. I wish I had more great days. During that time of the month I could just die. That is the worst for me.
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Do you have fibromyalgia and if so
are you able to get any relief at all from it? I was diagnosed about 2-3 years ago and it seems to flare. This morning when I woke I felt like every bone in my body was sore. Earlier I took a half tablet of a pain pill but I do not want to zonk out on anything as I want to work and don't need that, just needed some relief as just sitting in my work chair feel like my spine was right up against the chair. What, if any, things do any of you do for the pain, soreness, etc., etc. I know you probably know this is considered "all in your head" by some physicians but I gosh darn didn't even know I had something until my bones ached and when the rheumatologist ran fingers up my spine as I jumped off the exam table, told me then. When I awake, even if early, have to get up as too uncomfortable to just lie there in the bed. TIA.
Fibromyalgia
I have had it for 25 years and it gets worse all the time. The only time it didn't bother me was when I was pregnant (4 times!). I feel like I have the flu all the time and I am tired and exhausted. I also have arthritis and have had a hip replacement and need the other hip replaced now and I have degenerative disc disease and need spinal fusion. It never goes away -- ever. Stress doesn't matter and not being stressed doesn't change anything. A lot of drs. think it is "all in your head" and many have told me that. Some put me on antidepressants which helped the burning sensation a lot, but made me gain 50 pounds. Sorry to hear you have fibro---it is very debilitating. I work in downtown Chicago and have to walk 11 blocks from the train to work -- it is very hard. I had my first hip replaced when I was 43 -- very, very unusually young.
Fibromyalgia?
Wondering how many others here have fibromyalgia or similar illnesses and what your coping mechanism is? Recently diagnosed in January of thisyear? Finding it difficult emotionally/mentally to accept that one day I may feel great and then the very next day I'm laid up in bed - completely exhausted, hurting, etc...I know gotta get a grip on it - think positive - behavior modification - but it's still difficult at times - guess I'm just venting a bit and curious as to others here.
Fibromyalgia
 I have pain in my shoulders, neck area, lower back and knees. I also get a lot of, what I feel are severe headaches, no photophobia though. The pain is worse when I am under a lot of stress -- and when I have stress I often break out in shingles -- not fun at all. Sometimes when I first wake up in the morning I have trouble walking. My joints are really tight/stiff at my ankles. After I move around a bit it gets better. I'm 39 now, started having symptoms for the past 2 years now.
Fibromyalgia and CFS
While transcribing a report recently I came across a website that discussed somatization disorder with regards to fibromyalgia and CFS. I just did a Google on somatization disorder and it was the first website that came up. It was very enlightening and I definitely going to check out my medical records and physician dictations to see if I have ever been classified as having somatization disorder when in fact I have fibro and CFS. These are very different disorders, but fibro/CFS can be missed if a doctor is not well-versed in all 3 disorders. I hate it thought that many doctors do not want to be forthcoming with your medical records - I have run into that more than once. Well, I'm on a mission now -
fibromyalgia
I have this as well. Have had for years on top of osteodegenerative arthritis. For years the docs thought is was only arthritis (have had several implants in both hands.. All of the specialists I have gone to do not believe fibro is real illness. One had the nerve to tell me I was pain seeking. I was so angry.. Told him to do drug tests and whatever he wanted, but I was sick of the pain. My pain is located in my ribs and goes all the way around like at my bra-line (as if I were wearing one that is too tight).My BP went up because of it too.. Hurts all the time. Finally, my (really old old GP doc) whom I love told me that they have no real proof of this problem and a lot of docs don't want to deal with it. He put me on vicodin 1 a day. He told me to break in half and use it twice a day (1 pill) which I do. Although it doesn't stop it naturally, it does help me and I can work. He believes me and knows I don't abuse or over use.
Fibromyalgia versus the above MS
I know mine not as bad and really feel for the MS sufferer. I do not eat much sugar on a day to day basis, half teaspoon with first cup of coffee to get me started but not a real big protein eater either. I do not want to take a lot of ibuprofen if I can help although I did take 3 tablets upon waking this morning because of the sore all over feeling. Ibuprofen is really hard on your kidneys. I had pasta today that hubby fixed but will try on cutting back on the "whites." Is this something you heard or just something you tried? I am open to all suggestions what others have done to help their fibro. Again, thanks!
My husband has fibromyalgia
Hi, I have posted this on here before but my husband uses a natural supplement called Activive. It helps him tremendously, he has fibromyalgia and has chronic leg pain with it, sometimes it is unbearable for him. He tried everything before this, an antidepressant suggested by a rheumatologist, pain pills, etc. Nothing has helped him but this amazingly has. Maybe something for you to look into. God bless!!
Fibromyalgia, meant to say
in the above post. Thanks again.
fibromyalgia/Lyrica
I just thought I would let anyone with fibromyalgia know that I was diagnosed 16 years ago with this disease and I have been on many drugs and also homeopathic alternatives. Well, I saw my physiatrist the other day and asked him about Lyrica because I am tired of waking up and feeling chronically fatigued and so painful in all my trigger points especially in this cold/dry and snowy weather. Well, I have taken it for 4 days now and I feel like a new person, and I do not have any of the side effects that could go along with it, so I just wanted everyone to know that there is hope out there. I hope this information helps. Lyrica is the first FDA approved drug for the treatment of fibromyalgia. Also, fibromyalgia is now recognized as a disease to the point that Aflac will not insure you for short term disability if you have fibromyalgia, so that is something else that is new too in the world of fibromyalgia. 
Fibromyalgia Questions
I had low back surgery in June of 2006. About 5 days after my surgery, I had a huge muscle ball up in my back. Then everything went to pot. I finally was sent to pain management and they diagnosed me with myofascial pain syndrome.
I know the dx of fibromyalgia is very skeptical. All I know is I feel like I have been run over by a truck. My joints are killing me in my hips, knees and ankles. They are constantly popping and cracking. My neck muscles are constantly sore to the point where I cannot hardly move my neck. I even had 1 bout where all my muscles in my neck, down to my scapula and left arm locked up. I have very little use of my left arm with lifting because of pain in my left shoulder. Sometimes I feel like my body is misaligned.
Can you tell me if this is consistent with fibromyalgia symptoms and pain?
Advice from any MTs with fibromyalgia
Hi. I would like to know if there are other MTs around that have fibromyalgia, and if so, I could use some tips on working with it, especially during a flare. I was so miserable yesterday I had to quit early. Better today, but still not great. I'd love to hear from others in my situation. Thanks.
Need fibromyalgia info.
I know a lady who was just diagnosed with fibromyalgia. She has been suffering for well over a year and now almost two years. She has yet to break the pain cycle and feels that nothing will help her. She currently spends most of her time in bed.
I just wanted to know if there were any tips or treatments that have worked for people with fibromyalgia that might help her too. So any information, books, etc. that you are willing to share would be much appreciated. Thanks in advance!!!
Need some advice on this fibromyalgia deal
I am working and have already taken a half tablet of Oxycodone- do not want to be out of my gourd trying to work today. My back just up against the work chairs feels terrible, the ribs really hurt and I have some weight on me, gosh if I were skinny I would really be in trouble. Any advice out there as to how to sit here for 8 hours with pain?? Thanks
Have fibromyalgia and wondering if connection with
eating bread, things like Stromboli or pizza could aggravate this. I would have put this post on the immunosuppression board but not many seem to visit there. I was doing ok, taking some Lyrica which seems to have blocked a lot of the intense pain I have had and the other day ate some Stromboli and the rest of the day was very, very achy for me. Are there persons out here who might have some information on this, maybe working with people who have this or others who might have picked up information that can pass some on to me. I really, really love Italian food but I would pass on the bread ladened parts if that is what is causing the majority of the pain I have. TIA
Fibromyalgia/chronic fatigue - I had it for 7 years (sm)
Started at about 27. If they rule everything else out, that might be what you end up being diagnosed with. I have a tendency to go on and on about this because I tried so many things over the years, so I'll try not to do that right now :-). My first question would have to be "Do you get good sleep?" If not, please Google the effects of long-term sleep deprivation - I had ALWAYS been a poor sleeper, sort of anxious person. Long term DEEP sleep deprivation causes the exact same symptoms as fibromyalgia and chronic fatigue and other chronic illnesses because your body does not ever get a chance to completely repair itself. If DEEP sleep is an issue for you - that is a great place to start - get a good prescription sleep med and don't be afraid to use it! Over the period of a year of using sleep med and getting good sleep I noticed myself getting gradually better and better.
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