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My 13 y.o. niece has just been dx with Grave's disease. Does anyone here have any info or sm

Posted By: concerned aunt on 2007-01-11
In Reply to:

advice on what I can tell my brother about this? They are such a precious family. Brother visibly upset over this because he has been disciplining her for behavioral problems, etc., when all along it's been here thyroid. They want to do radiation right away to help shrink it? Or possibly remove thyroid altogether. She is so pretty. I spent the summer with them and yes, she did act diff. from other 13 year olds, looked very developed for her age (to me), and her eyes weren't bulging to me. I'm so glad they caught it today. It sounded like she was in the early stages of shock with fever, shakiness, etc.


Anyone with experience in this? Thank you so much.




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That seems to be debatable even in the medical field. Disease or not disease?
things that could lead to diabetes and hypertension are true, they are still diseases and could obviously occur with or without staying away from known causes.

But for you to come here and say alcholism is "NOT" a disease is a little extreme and maybe should have been accompanied by IMO? That is my opinion anyway.
Does anyone know where to look for poems or sayings to put on a grave stone? sm
Unfortunately, my brother and I have to go pick one out for our mother and I would like to find a nice poem or saying about mothers to put on it. Anyone with any ideas?
Poems or Sayings on Grave Stones

I am very sorry to hear of your loss.  I lost my mother 16 years ago when I was only 19, and it was the hardest thing I have ever been through in life.  This web site has many varieties:


http://www.exterior-accents.com


Good luck with finding what you are looking for and always try to focus on remembering the good times you had with your mother.


MT in MS


Her mother is crazy...I could never walk on someone's grave...

even visiting loved ones in the cemetary you know not to walk over other peoples graves...I was taught that when I was younger---LOL...totally disrespectful...Her mother is just angry that she is buried in the Bahamas and not in Texas....


It isn't uncommon for the loved ones to throw some dirt on the grave. sm
I didn't see it though so am not sure if this is the type of thing you are talking about or not.  In my husband's family the men actually stay and cover the grave using shovels, but it is a different culture than what we are used to in the US, he and his father covered his grandfather's grave and my husband covered our son's grave.    Not sure about 'walking' on the grave though... that seems disrespectful... but again, I didn't see so don't know.
Anna Nichole's mother did not just put dirt or whatever on the grave, she
actually WALKED over the top of the grave. I was shocked because where I live so disrespectful, had never ever seen this done before. I am southern and her mother also lives in the south. Just not done in my neck of the woods. Even after burial, I always try to go around marked graves, never treading on them if I can at all keep from doing so.
It IS NOT a disease. The use of it causes disease but
alcoholism in itself is not a disease.  My husband was also predisposed to it by *genetics* (his mother and father were also alcoholics).  He should have had better sense than to ever pick up the first drink, but he didn't.  Now, for the rest of his life he will have to battle with the fact that he is an alcoholic (albeit, a recovering alcoholic).  He CHOSE to drink.  He CHOSE to take the chance and it caught up with him.  It's just like cigarette smoking.  That's not a disease, but the effects of the cigarettes cause disease.  If one is predisposed to something harmful, they need to take control of themselves and stay away from whatever causes the problems associated with it.  Both of my parents are diabetics, so that predisposes me to diabetes.  They are both hypertensive (as am I).  I'm predisposed to have hypertension, but I have to use my common sense and stay away from things that could cause the hypertension to blossom into something much more serious.  The predisposition to alcoholism has to be handled the same way.  STAY AWAY FROM IT!!!!! 
Does anyone have a dog who has Cushing's disease? sm

My mom and dad's daschund was diagnosed with Cushing's disease.  She's 15 years old.  She's going to have to be medicine for the rest of her life.  I've read on a web site this can be fatal.  Has anyone ever had any experience with their pet having this?  thanks.



lyme disease
Friend's dog was chewing paws because joints were sore from Lyme disease.
Disease question

As someone in recovery for more than 9 years this is my take on it.  Addiction (alcohlism) is a combination of nature (genetics) and nurture (environment).  One can be predisposed to addiction but never know it if they never ingest the substance.  Many people drink but not everyone is an alcoholic.  Drinking the alcohol is a choice that one can control, but once an alcoholic or addict makes the choice to drink, they no longer have control over how their body reacts to it.


If classifying it as a disease is a way for health insurance companies to pay for treatment and healthcare for the alcoholic or addict, then that is fine with me.  But it is NOT an excuse to drink and once one admits or realizes one is an alcoholic they ARE responsible for what happens after they take a drink.


To the original poster wife:  The best way you can help your husband is to take care of yourself and your children through Alanon, Alateen and/or counseling.  The only person YOU can control is YOU.  Lives by example.  Your husband just might find his own way to changing his life by watching you change yours.


 


thyroid disease
I have hypothyroidism and take Unithroid.  I'm up to 150 mcg a day.  The only thing I am sensitive to is hot and cold.  My internal thermostat does not work well.  No medication sensitivities though, but that does not mean much as each person is different.  We all reactive diferently from each other.  Good luck though.  Hope things improve with this.
Foot-in-mouth-disease

At one time or another we have all suffered from it.  Sometimes, things just pop out of our mouths before we have had a chance to edit them.  What was probably a poor attempt at conversation turned out to be an embarrassing situation for both of you.  Accept his apology and move on. 


A lifer here, too. It used to be called a disease!
That really freaked me out on hearing that diagnosis. Cysts and pain come and go - supposedly we are to avoid chocolate and coffee/caffeine. yeah, right! No way! I do not do breast self-exams, and was also instructed not to do them as well by my OB/GYNs and surgeons, as we will always find a lump and then freak out. I have yearly detailed mammos - dozens of shots for surveillance. Had a cyst aspirated now and again, and have always been fine. In my 50s now and have gotten used to it - not lazy about it, but just not so afraid. Information is power! It is a very common "condition", by the way! We are all in good company!
Polycystic kidney disease....
My husband was just diagnosed with this.  It is the mostly common inherited disease there is and many people don't know they have it.  It generally leads to renal failure later in life.  There is a new clinical trial beginning right now for a drug that is supposed to shrink the cysts.  This is the third phase and so far it has been extremely successful.  The clinical trial is at Johns Hopkins University in Baltimore.  Let me know if you need more info.
...going on here, including a few disease processes. nm
s
My thirst is Sjogren's disease! sm
I am always, always and forever chronically thirsty, but I don't have the polyuria to go with it.

I have dry eyes, dry nose (to a point where it is usually pretty full of scabs), dry mouth with caries at the gumline. I have gastroparesis and proctalgia fugax which often go with Sjogren's just like the rest of it. Dry skin and feeling like you are drying out from the inside out is part of it. I even get a nasty, clay-like sludgy feeling in my mouth and throat from my stomach being too dry to digest.

It is misery and even better than a gallon of water a day doesn't fix the dry feeling, but it keeps my kidneys from shutting down from being dry.

Lovely huh?
Every woman in my family has thyroid disease...
and only about half of them are overweight, so that's just another excuse. You really need to stop blaming other people for your weight problems and take control of your own situation. I too have hypothyroidism, but I am a size 6 and was only overweight when I was eating unhealthy and not exercising. If you're really only eating one meal a day, I can guarantee this is why you can't lose weight! Your body is probably holding onto everything you eat because you're starving it!! You absolutely need to eat 3 (small) meals a day and 2 snacks. There's a book called The 3 Hour Diet that can really help you with what you should be eating, how much and how often. You sound like a very angry person and like you don't want accept that you're responsible for your own health. Honestly, you're not overweight because of what the government does or doesn't do, it because of what you're doing to your body.
And the scariest part is, they then carry this disease
among many others without even knowing and spread them around.
absolutely. its a disease, and a super prevalent one also.
.
Absolutely, it is a disease, but one that a person can recover from if they
have the desire to be sober. Unfortunately, there is no test to tell you prior to your first sip of alcohol that you area an alcoholic and will suffer from this disease and hurt everyone, including yourself. Fortunately, however, there are steps to recovery and, albiet it not a cure, it does not have to debilitate you. I am a recovering alcoholic and have been for 13 years. My recovery started with admitting my problem and taking the necessary steps to change and find other ways to deal with my self-esteem, problems and anxieties other than a drink. Since my recovery I have not only become "sober" but a much better person and very serene with my life, which of course has made a very producitve member of society and not "disabled." I think someone who accepts disability based on their alcoholism has not only accepted their fate, but accepted its consequences and not willing to change. I really think that is very sad.
I studied the disease back in 98 when diagnosed

and thank goodness for the web!!!  I continually get educated all the time from being online.  I love it.  Glad you're feeling well!!!!  Attitude has much to do with it.....


Anyone with thyroid disease experience sensitivity

I have had thyroid disease for about 5 years now and am on Synthroid for it. I find that I cannot tolerate caffiene very well and narcotic/anlgesic medications, such as Novocaine make my heart race and make me feel so weirded out I can no longer tolerate this. I cannot even have a wisdom tooth pulled because of this.

Anywa, I thought it was just me but I recently read in a magazine that thyroid disease could cause sensitivity to medications. It would stand to reason once your thyroid levels were adjusted this would go away, but such is not the case with me. Does anybody else have this problem?


If you have a child with a life threatening disease
you possibly would think a little different about this issue. I do and saying full steam ahead.
niece
Oh yeah, she may be mad at you now but just look at it this way in the future she will look back and be very thankful that you stepped in! Don't let yourself be talked into not mentioning it and keeping quite. This could end up being her life you are talking about here!
One niece was an MT
for a physical therapy place until it went out of business. She was making a lot of money but only knows physical therapy stuff. Two other nieces have talked to me about it, but one is not motivated enough to work at home unsupervised. The other niece recently had to quit her job in graphic design to stay home with her 1 year old son who has been diagnosed with juvenile diabetes.
I wish my niece could know you
She needs to develop a backbone and realize there is life after a "control freak", abusive, alcoholic, drug dependent jerk!!!! You go, girl - so glad you found a millionaire - Does he have a brother between 48-55? I never know when my circumstances may change. Love my husband, but you never know - he's lots older than me - I have to be prepared, ya know? Next time, I want nice, fun and definitely rich, so I can do this job only if I want to, not to pay the bills.
my niece
You can tell them not to be like my niece who is going to be 14 in about a week. She is a young lady now. She does not bathe, brush her hair, wear deodorant, or brush her teeth. She has now gotten over 13 cavities and will be spending the next sets of mondays at the dentist getting teeth fixed. She also has terrible gum disease. I have tried talks but she is not my child. She does not live with me so it is hard for her to listen to her mother. Her mother really isn't much better. Instead of washing clothes, when she was younger, she would just take her to a thrift store and buy whatever they had. Tight clothes, too small, too big or whatever. Tell them they don't want to be the stinky kid with dirty clothes, hair, teeth that are crusty and bleeding, with clothes on like that. We now call it "don't be a morgan" to my 12 year old who does not want to brush his teeth or retainer, mostly because he does not rinse the retainer off enough and it tastes funny. HA.
your niece
What a GORGEOUS baby!!
You certainly are blessed, and your sister is blessed to have a sister as kind-hearted as you to have come stay with her!

Merry, merry Christmas!
My niece
the love of my life! doing this right here! holding her as much as I can!!!

PS i understand about your cat though... before i moved closer to be with my niece, my dogs would always make me happy
Thank you for sharing that. Yes, thyroid disease left untreated can sm
be a very serious thing. I appreciate your response. Good luck to you!!
My daughter has hand, foot and mouth disease
She has 4 ulcers in her mouth and, of course, is in pain and won't eat anything. I put some cereal and milk in the blender this morning and she drank that okay, but her poor little mouth is really painful. We tried the saltwater rinses, but that didn't help. We have been using Orajel on the biggest sore, but was wondering if anyone has any other ideas for pain relief. She's been coping pretty good with the blisters on her hands and feet so far, but this is only the 2nd day. Hopefully, this will be over soon. Thanks for any help!
Check out celiac disease from gluten allergy
Many times it is mistaken for IBS - my grandson is being tested for this by GI doctor on the ball!
Incidental finding, polycystic kidney disease
Not something that I would have liked to hear but being as older, told the doctor maybe can outlive the cysts, i.e. having to be on dialysis and/or dying because of them. I had an MRI of another region and those picked up, told someone in my family had to have and know of no one. The cysts I have can go anywhere in your body so they will watch them every few months, no abnormal lab tests or the like, found those about 2 years ago. The kidney cysts are the only ones I know of.
My sister and niece
are really cat people, too. They are really funny. My sister used to have one, Luke, a big black cat wearing a texedo, who would every year without fail stalk a wooden Christmas elf we set out, glare at it for a minute or two, then take that giant paw and give a big swipe and knock it to the floor. Every year, same elf, same reaction. What a gem! We laughed til we cried! Thanks again. I am meeting a friend tonight for dinner, and her two cats are the love of her life!
Need advice on niece

My sister has a daughter, 7, with some behavioral and speech problems.  In school today the teacher asked her to "hurry up" and my niece grumbled and gave a look.  Apparently, on the bus she told her classmates that she was going to "put a bomb in Miss _____'s milk."  Those students in turn told the teacher.  Teacher responded by telling niece it was inappropriate and that she was spending time with the principal tomorrow.  My sister is at a loss on how to approach my niece about this.  She is kinda of jaded when it comes to this particular daughter, thinking she's just fine, but this niece has always been violent.  How should she approach her daughter (in 1st grade) in this situation?


TIA!


How often do you see your niece/nephews

My brother-in-law and sister-in-law moved back to this state recently after being gone for many years.  They have 2 teenagers.  All 4 are living with grandparents right now, most probably indefinitely but that's a whole other story.  My question is how often do your niece/nephews spend the night at your house?  Mine are also out of state so it is hard to say what it would be from that side.  I just feel like after having little family here for so many years I am now on family overload.  These kids want to stay and be with us all the time.  Granted, I understand they have no friends bc they aren't in school yet and they like us more than gma/gpa and their own parents but I rarely say no bc I don't want to be the bad guy but I like my piece and quiet!  and of course I like less mess to clean up.  not to mention teenagers are expensive.  So what's the average out there?  Once, twice a month?


My niece recomended something to me that

WORKS AND IMMEDIATELY!!!!!   She told me last year and I kept using other things and a few weeks ago bought it and she nailed it!!!


 


GOLD BOND!  


I got the Medicated, but my sister got regular and she says the same thing.  THIS STUFF WORKS.  The medicated is wonderful because it instantly cools the skin and NO MORE ITCH.  It is menthol, and therefore would not use it on face or around the eyes, but it has STOPPED the unrelenting itch of legs and arms for me!


My niece died from
obstructive sleep apnea at 37. I did not see at my father's funeral. I was not called when she died. My brother's wife called my first cousin and he passed the news on to his mother (my maternal aunt) and maternal aunt called me. I had no idea (being as my brother did not speak nor want me in their lives) that the niece had gone thru so much. My aunt and I went to the funeral home and funeral and the mother told me about what kind of life she had, drugs, alcohol, prison - yes prison. No one ever told me and this was about 3 times she was in prison. I never knew anything about these kids coming up. The mother told me the niece did not have insurance, could not afford CPAP. I would have bought that had I known but like I said, brother made the decision to NOT have me around and I went along with his wants. The only heirs would be my brother's children, not his wife, not ever. I am sorry you do not tend to understand this but this is the case. In the years since 1973 no one from that family called until nephew in jail in maybe 1986 or 1987. I never heard my name called by Aunt on the first part of it. Only sibling I had. I have complete peace of mind and sleep like a baby. After my brother died with his children being 4 and 6, his wife could have reached out to me then, did not happen. All water under the bridge, long time ago.
Oh and the model is my niece....sm
But she is like my own. I have kept her a lot since she was 5 weeks old. Sis-in-law is single and when she would date I would keep her. The child's dad is a loser. He walked away when sis-in-law got pregnant and hasn't seen Addie since she was an infant and doesn't want to even though he lives a few miles away. So I say she is better off without him.
Praying for your niece and family....
Lost my dad to this a year ago, about 5 years after being diagnosed. Blessings and strength to your family.
RE: Thanks everyone for your replies. I have forwarded them on to my niece who is the one (sm)
who had the positive test.  She is only 21 and this is her first pregnancy.  All your replies are greatly appreciated!!  Thank you!
I'm sorry to hear about your niece, Lilly
I'll keep her in my prayers.
It is totally ridiculous, my niece just went to hers
and got her dress and all the accessories at David's Bridal, it was more like 500.00 or so. That's not including the extra cash she needed to go out afterwards to *Friday's*. They are 14 years old! AND then they expect these Sweet 16 parties? LOL Well, if the parents do it, they're to blame. I don't really know if it's actually for the kid or just to *keep up with the Joneses* or to try to impress or what it is but it is getting out of hand now. We had none of that stuff growing up. I think our parents were smarter than that and didn't put themselves in DEEP DEBT with credit cards etc. So at least we'll be getting inheritances. These kids will be crying down the road that their parents spent theirs! Oh well ;) LOL
Talk to niece not your sister
Make this an oppotunity to bond with your niece.  Don't tell her who told you, just talk to her alone and in a nonconfronting manner.  Her sexuality is none of anyones business, teens have sex its been happening for 100s of years.  She needs to know you are concerned about her health (pregnancy happens and lives change and things usually work out okay, but STDs can kill and infect more than just her.  Offer to take her to a clinic to get tested and encourage that if she is going to be active then she needs to be on birth control plus a barrier method for her safety and her partners' safety.  I would also talk to her about the drinking any other substance use that , may be going on.  Offer her your ear to listen to her need to fit in, which is probably what is going on.  She will hate you if you go to her mom,try talking to your niece first.  See if she wants to go out for some girl time, shopping at the mall and out to lunch or something.  Car rides are a great opportunity to talk and bond with nieces, daughters, etc..., and she can't storm out of the car if she gets upset.
That's what I told Lisa, my niece. She was in
disbelief. What really hurts is that her little girl was with her, and there is nothing in the world more important to her little girl than her "kitties." She carries them around and surrounds them with stuffed animals and is turning into a wonderful pet person. I am just so happy about that!  I don't always approve of kids having pets, especially when very, very  young. My niece waited until her daughter was of the age and understanding of respecting them until they went to the shelter, then back later for a second one after her little one kept asking for another!  What a happy home for the cats!  They found the pot at the end of the rainbow with the two of them!  LOL!!!  
I agree with you on that. I saw it for myself when my niece married. SM
Her husband's sister just automatically developed an additude toward my niece, who is very quiet and very nice and could not be a better wife and mother. The sister was actually jealous of my niece and actually made comments about how no one would have ever been good enough for her "Joey."  My niece was good to his family whenever they visited (they lived out of state) but finally told her husband that she would prefer to stay at his mom's house when they visited, even though the house was smaller. She was tired of the cold shoulder she got at ther sister's house. I saw it with my own eyes. It truly can happen for no reason whatsoever. The rest of the family loves my niece.
niece and restaurant -- are those right? can't get 'em
just hate that.  i've added those to my Expander so they correct themselves... i know there's more ... 
Lucky you! My niece has a red Australian Cattle Dog
and she is adorable. Name is Reggie. She was taught to ring a bell when she needed to go out and learned to do so in 2 days! She herds everyone when they are in the pool and my niece must actually stop her or she gets blisters on her little feet and is worn out! They are incredible. I know some people refer to them as Heelers as well, maybe the same thing or maybe a tad different. In any event, what a great dog!!
I am in Bluefield, VA. My niece is in her first year at Marshall. nm
!
That is so cute! My niece's little girl cracks me up, too. She
just painted a picture for me that she has been working on for quite some time.  I went over on Saturday night and she had me close my eyes for the unveiling.   It is adorable.  She made a  yellow background because she knows it is my favorite color.  They are so precious, aren't they? 
She is gorgeous, and a twin to my niece's beautiful cat, Nina! NM

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