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Wow.. we have an infant amongst us.. nm

Posted By: and you're it JJ on 2006-05-11
In Reply to: Chris got the boot. - JJ


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Many thanks to my OP on infant seizures. sm

I apologize for not getting back to you sooner, but I went on a mini-vacation the afternoon that I posted my original message and lo and behold, I found things to do that didn't have to do with being on my computer.

One thing I'm happy to report is that my grandson laughed the other day.  First time we've heard him laugh in a couple of months, which was before he started having the seizures..  My 11-year-old daughter has a stuffed monkey that makes kissy noises and then squeals like a monkey when you push a button.  We tried it and he smiled, laughed and kicked his little feet.

He doesn't just sit and stare like he used to, so I guess we're making progress.

At any rate, thank you all so much for your input.  It is very much appreciated.

Could use some personal input on infant seizures. sm

If any you are dealing with or have dealt with seizures with infants, I could sure use some help. 

My grandson is now 8 months old.  He started having seizures a few months ago. (Incidentally after having the usual immunizations).  We all knew something was "wrong," but all that he did at first was roll his eyes back and was referred to pedi ophthalmology and was diagnosed as normal.

Then he started rolling his eyes and tensing his whole body up and then it got worse.  He stopped smiling, stopped making eye contact, etc.  It wasn't until he had a seizure in front of the pedi that something was done.  Supposedly.

After being admitted to the hospital and undergoing EEGs, he was diagnosed with seizures and sent to a pedi neuro specialist.  He's on meds and he's better, but he still has them and there is no way to pinpoint why, where or when he is going to have them.

The poor little guy just suffers so during his episodes.  There is no warning.  He just starts crying in a strange cry.  If I have him with me, I go grab him, hold him close and talk to him and rub his little head and tell him "almost done, almost done." He cries and I cry and then 2 minutes later it's all over.

I hate this.  It breaks my heart, as well as his mom and dad's.

Sorry to be so long, but any input outside of a medical professional standpoint would be helpful and I would  very much appreciate it.



You can't take care of an infant all day and work full time.
My son was diagnosed as an infant. Prevacid helped tremendously! Hope she gets better. nm