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Could use some personal input on infant seizures. sm

Posted By: Gram on 2006-07-02
In Reply to:

If any you are dealing with or have dealt with seizures with infants, I could sure use some help. 

My grandson is now 8 months old.  He started having seizures a few months ago. (Incidentally after having the usual immunizations).  We all knew something was "wrong," but all that he did at first was roll his eyes back and was referred to pedi ophthalmology and was diagnosed as normal.

Then he started rolling his eyes and tensing his whole body up and then it got worse.  He stopped smiling, stopped making eye contact, etc.  It wasn't until he had a seizure in front of the pedi that something was done.  Supposedly.

After being admitted to the hospital and undergoing EEGs, he was diagnosed with seizures and sent to a pedi neuro specialist.  He's on meds and he's better, but he still has them and there is no way to pinpoint why, where or when he is going to have them.

The poor little guy just suffers so during his episodes.  There is no warning.  He just starts crying in a strange cry.  If I have him with me, I go grab him, hold him close and talk to him and rub his little head and tell him "almost done, almost done." He cries and I cry and then 2 minutes later it's all over.

I hate this.  It breaks my heart, as well as his mom and dad's.

Sorry to be so long, but any input outside of a medical professional standpoint would be helpful and I would  very much appreciate it.



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Many thanks to my OP on infant seizures. sm

I apologize for not getting back to you sooner, but I went on a mini-vacation the afternoon that I posted my original message and lo and behold, I found things to do that didn't have to do with being on my computer.

One thing I'm happy to report is that my grandson laughed the other day.  First time we've heard him laugh in a couple of months, which was before he started having the seizures..  My 11-year-old daughter has a stuffed monkey that makes kissy noises and then squeals like a monkey when you push a button.  We tried it and he smiled, laughed and kicked his little feet.

He doesn't just sit and stare like he used to, so I guess we're making progress.

At any rate, thank you all so much for your input.  It is very much appreciated.

Wow.. we have an infant amongst us.. nm
My daughter had seizures at 9 months old. (She has special needs) She is now 21 and has been seizure-free for over ten years. No meds.
First, while a baby is having a seizure, you should put them in a safe place, like the crib or on the floor on a blanket. Somewhere where they are safe and will not hurt themself and lie him on his side so that any saliva from his mouth can drool out. I always tried to time the seizure. Sometimes, it takes trying different medications to find the one that works. Seizures are difficult to diagnose. Any fever associated with them?
Keep a log book on when he has the seizures. Good luck and if I can help in anyway, please let me know. I know seizures can be terrifying to watch.
My son HAD seizures.....(SM)

When he was five or six he was eating a granola bar and all of a sudden he couldn't talk and he started drooling.  I called 911 and the paramedics came.  They thought he had choked.

The second incident happened when he was playing a video game.  This time his left cheek started twitching, he couldn't talk, and again was drooling.  I called the pediatrician and they thought it was related to playing the video game.  I took him to the ER and this is what the doctor said (I will never forget this)...."it is not a seizure" and he jerked his arms and said "this is a seizure."  He was describing a grand mal seizure.  My mom is a nurse practitioner so I knew from her that there was more than one kind of seizure (I wasn't an MT at the time). 

I then went to his pediatrician who referred us out to a pediatric neurologist.  The neurologist felt it was a partial simple seizure and ordered all of the usual tests, which confirmed the diagnosis.  He was put on Depakote 100 mg and had only one more seizure in two years.  We tried taking him off the Depakote during the summer (while he wasn't in school) and he had a seizure.  He then was on Depakote for another year seizure free.  We took him off the next summer and he has never had another seizure.  Some people use the term he grew out of the seizures, but actually his brain re-routed around the affected area in his brain that was causing the seizures.  He is now 13 and he is still seizure free.

My advice is to seek a second opinion.  It never hurts.  You can even seek a third opinion.  Different doctors have different ways of treating patients.  Research his disease on your own and also look for alternative treatments other than the norm.  I know my son's seizures weren't grand mal, but they scared us so.  We are so thankful his body corrected itself and he no longer has them.  I'm cautious with him injuring the area of his brain that was damaged and always tell his coaches and teachers about it just in case.

I wish you and your family strength and courage.

It has a lot of uses, another being for seizures...
My doctor suggested I try it when nothing else worked. I had to start at a real low dose because it made me very sleepy. I am on 300 mg, which is still a low dose, but that is the dose that seems to help the most without the side effects. I also take Wellbutrin too though. Every time I would see a doctor, they always tried just one pill. Finally a psychiatrist told me that one pill wouldn't work because I have several different things going on, so a combination of meds would be more appropriate. I had already been on the Wellbutrin for months. She at that point added the Neurontin. I could tell a difference right away.
DSR for seizures.

DSR: The patient died of seizure well without complication.

Dictated:  The patient tolerated the procedure well without complication. 


My 20 year old daughter was just diagnosed with partial seizures.  We could not wake her up on Sunday morning and had to call the paramedics.  My question is does anyone take Trileptal and is there side effects or are you having success with it.  Are you able to drive?   My daughter says her lip goes numb when she first takes it.  I have done research but I would like to know if anyone had first hand experience with it.  THANKS IN ADVANCE.

I used infant onesies
When my Shih Tzu was neutered, I bought infant onesies that go up to pretty large size but I am not sure if they are big enough to fit your cocker. Also, my now 11 y/o dog, 20#, Shih Tzu (who I unfortunately never got neutered and will never make that mistake again), wears a Huggies size 4 diaper (the ones that have stretchy material and seem to last the best for us) as a "belly band" as he decided to start marking in the house for this past year. I feel he is too old now to be put through anesthesia/neutering so we opt for diapers instead inside the house. Of course, it depends on whether you have a dog that would tear it off as soon as you put it on whereas mine fortunately doesn't touch the diaper.

Another thing, should others encounter neutering in the future, you can ask to have them "glued" I do believe as my middle Shih Tzu was when he was neutered a few years ago. Same with my tiny female when she was spayed.
being productive with an infant...?
Hi everyone!! I have a 6-week-old beautiful baby girl who LOVES to be held all of the time (she is breastfed). I've really been struggling with making production, and I was wondering if anyone had any tips or advice on this. I do not want to have to pay a sitter, as I feel I can work this out. Sometimes she is content to lay across my lap, propped against the arm of the couch. This works pretty well (although I'm at a funky angle and make more typing errors)...since she doesn't tolerate the swing or the bouncy seat for very long....
Infant Circumcision
Can anyone direct me to a sample male infant circumcision sample report?  Of all the things to sound simple, I have never done one of these and this is an ESL doc and I can't understand hardly a word...lol...Thanks!!!
seizures - 2 hours long
My daughter had grand mal seizures since age 18 months (after her immunizations of course). She had them until she was 4 1/2 and then they restarted at age 12 (when we were living near a nuclear plant) - University of Wisconsin has the best ped neuro program, Harvard has another. The child does not suffer normally -- onlookers suffer more than they do if it is any consolation. My experience with the entire medical field of neurologists has been substandard -- look until you find one you trust. Beware.
You can't take care of an infant all day and work full time.
My son was diagnosed as an infant. Prevacid helped tremendously! Hope she gets better. nm

This is not personal for me.
This afternoon I watched coverage of the mother and I am embarrassed for her as an American.  She has gone far beyond the first time I saw her and really felt sorry for her.  I believe her criticism is harsh assuming she knows no more about what happened to her daughter than we do or the judges in Aruba do. 
Isn't that personal?
The best interest of the patient has to be examined here. Why, in order to prove something that is said about other occupations, do you compromise the patient's privacy in order to prove yourself?
Not sure if you mean as MT or for personal (sm)
If for MT, here you go:

my personal ob/gyn uses (sm)
EMR. I must say that as a patient I do not like to sit there while he types into his system, looking up at me occasionally to ask a question. It is very impersonal and, as I think you ORS is going to find, quite time consuming on his part!

I have no idea how he'd get his IMEs done, either. The one EMR report that I've seen (had to take one from my ob/gyn to a neurologist for my migraines) looked very "computer generated" and not "personal to me" at all. What a turn-off for a $150 doctor visit.

If your client is very busy, hopefully you will be hearing back from him once he finds out how time consuming it is entering all that data!!

Bonnie, new to the board
Dear SM, given your abject anonymimity, how can the question be personal?
Try not to take it too personal...sm
sometimes some people just struggle with being nice or trying to help. Everyone needs a break some time...even her. good luck to you!
My own personal take on that....

My daughter was in the process of being preopped for back surgery for scoliosis in her thoracic spine.  She had had before playing basketball, but she got injured during a game, which really exacerbated it when a girl fell on her neck/upper back.

Anyway, the PA in one of the many consultants offices we went to actually asked, "Who fell on you?  A teammate or someone from the other team?"  My DH and I looked at each other and could hardly keep from laughing, but God love my daughter who answered her with a completely straight face, but asked later, "What difference does it make who fell on me?"  That question still makes me scratch my head.

Same here, but it was my personal PC, and...
I ended up pulling off just the bare necessities (critical documents and e-mails), and I had to take it down to the dirt...partitioned the hard drive and reformatted, reinstalled the operating system and all my programs. I have degrees in programming and information systems, and it still took me 20 hours to do. If you can't do that yourself, you need to get it to someone who can, but plan on a pretty big bill, I'm afraid. It may be as much as a couple hundred bucks, maybe a little more.

I am so sorry for what you are going through! I think virus programmers need to be stuck in front of a firing squad.
I'm with ya on that one! ALL of our personal

personal thanks

Thanks so much for being so cordial. I just read a nasty gram telling me that basically I have been complacent for 18 years and now need to join the 21st century. I have done work on-line over the years, but have never had to take a test. I have tons of reference materials and just have nearly always used WP. I do know how to do Word, but don't use it every day.

Can you tell me who you are working for now? Any advice for me?

Again, thanks for being so helpful. I am going to go on E-Bay today and order that.

Write back with any advice, please.

Thanks, Jeanie
my input
There are many companies out there, and the majority of them are good companies. Most jobs are work at home, too. There are pros and cons to every single MT company. What works for one MT won't work for another. Research the Company board. Use the MTstars search function. Read the Job Seeker board to see who's hiring. If you apply and get a nibble back, ask questions specifically. However, I don't think we're all going to list every MT company we've all worked for.

Here are some hints. Don't pay for proprietary hardware or software from the company, buy it on eBay, don't work for free, don't work for less than what you think you are worth. Even when I started out as a total newbie grad from a terrible school, I still made $.065 per line.

The average MT can do 150 lines per hour, so 1,000 lines would be roughly 6.5 hours of work. I expect to put out about 1,200 lines today by noon, and I'm certainly not as fast or experienced as most on this board. There are people out there consistently doing 250-300 lines per hour, so 1,000 lines per day is certainly feasible.
Thanks for that input.
I thought there might be something wrong with me.  Maybe I'm too critical because I keep finding something "wrong" with all these kids.  They're just kids.  Yeah, little demon spawn is my favorite term for them.  These little beasts have no respect for other people, their possessions, or adults.  It certainly makes me appreciate my own kids so much more.  I don't tell them enough that they're good kids.
Thanks! I will look into both of these. Appreciate your input! nm
Thanks! I will look into both of these. Appreciate your input! nm
Thank all of you for your input!
I appreciate the info on both Cymed and Transolutions. Sounds as if Transolutions is the better of the two. If this does not work out, I think I will try doing IC work - just need more info on it. Guess I would have to check into insurance. Have Cobra now and it is sending me to the poor house. Thank you.
Thanks for the input
The person I dealt with was Jennifer, but I never met her, just back and forth over the phone and naturally she was very positive.
Thanks for the input. NM
Thanks for the input - sm
We aren't in Western Washington, other side of the mountains and she is even further east from me, about an hour from here.

They will get help. It may just take a little while longer before they can find someone qualified for it.
Thanks for the input everyone (nm)
TY everyone for your input..

I think I will get busy on approaching some of the chiro's in the area then.  Small town here..not many facilities to choose from for just rad and someone else suggested trying chiro.  Any other suggestions would still be greatly appreciated as well as any websites or individuals willing to share some sample reports.  Feel free to email me with samples/more suggestions.

Thanks again!

Thank you both for the input.

thanks for your input!
Thanks for the input.
My primary account, though it keeps me busy and has for over 10 years, there is no extra work.  What I do and what another girl does on weekends is all.  I did take on another account at one time but it was either too much or not enought.  Too much for me to handle accurately and do domesticated stuff and dropped back to handle both but not enought money.  I think I will just have to buckle down and stress to family (kids are old enought to help out) that they will have to pitch in or do without!  Thanks again.  You do help me feel a lot better!
Thank you. I will try that. I appreciate your input here nm

thank you for your input
The local is sort of what I am leaning towards..
Any input? Looking in to them.
I appreciate it!  Thanks! 
Thanks for your input.....
I guess I will just take today as a day to do some "testing." Thank you so much for sharing. I feel so alone and worried about my future as an MT.
Thanks again, I appreciate your input...
more than you know! Yes, I am definitely a female, I'm sure my sensitivity shows here!! LOL

Would I be going against anything if I sent a letter of apology to those docs for what happened? It isn't like I would be going against noncompete as I would not be trying to get their business, just to apologize and set my mind at ease and get closure.
Thank you all so much for the input....
thanks for input
I appreciate the input. try and have a better night! :)
Thanks for the input! nm
Thanks for the input!

Thanks for all your input. sm
But Home Depot does use subcontractors.  I asked if they speak English and was told NO.  So, I'm looking at local carpet stores.  Found a lot of horror stories on the net.  Guess it depends on which Home Depot you use and which subcontractor you are lucky or unlucky enough to end up with on your project.
Thanks for your input

 Leaving the office and going home to work sounds like something I should seriously consider.  I moved from Oregon to Texas recently and was shocked to find the wages so low.  I went from $15.00 an hour to $9 an hour and nothing around here pays anymore. Believe me my goals are higher than $9 an hour. Thanks again and I'll be hanging around!

Thank you all for your input
The part time job I work at is small and very personable, so with this newer job I have, at a bigger company, I wasn't quite sure. It sounds like I should not send her an email. I just really hate to leave all of these blanks, but you should really hear this guy - he has a very thick accent, he is mumbling like crazy, and coughing in my ear. I feel like the whole report is one big block of swiss cheese.

Thank you all
Thank you for your input, as well
I'm certain there are many QA'ers that do not have a power trip. I am just so used to the small company I work for that I did not know what was proper. My particular QA rarely sends me feedback, which I value because I am still fairly new. In light of your post, I won't take it so personal anymore that there is no "personal touch" given. Thanks a lot
I will...And thanks for all your input...
Next round of competition is August 12.
Thanks for all the input! sm
I am an old-time MT. I was able to obtain an at-home position due to my acute care in-hospital experience. So, I was not able to give my SIL much advice regarding schooling. She has been traveling about 60 miles round trip to get to work each day and she is having a baby in February. She was asking me about my job and when I explained a little about what an MT does, she was really excited about it. She is an excellent typist, so I'm hoping this will be the answer for her in the end. Thanks again!