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OT-Anyone have polycystic kidney disease?

Posted By: At Home MT on 2006-07-31
In Reply to:

I have just recently learned I have polycystic kidney disease (my mother died of kidney failure) and the cysts are on my right kidney, adrenal gland and on recent CT, (only two months from my first one), I have now developed cysts on my liver too. The kidney cysts are bleeding. :( I have daily right-sided aching and back pain. My right kidney is deformed and I have reflux on the right as well as kidney damage from childhood.

My whole illness started out about eight months ago as benign paroxysmal positional vertigo and it was horrible with nausea, anorexia due to that, and significant weight loss. I had two Epley maneuvers that corrected the vertigo. A CT of the abdomen and pelvis was done and that is when the first cysts on the kidney were discovered which I was told were not concerning in someone in their 50s. In the meantime, I had started eliminating a couple of my Rx meds and the nausea stopped, and so I felt they were the cause of my nausea which in a sense I feel could still be true but perhaps more due to not metabolizing the meds appropriately due to kidney and/or liver problems but I do not know that yet. I do not see a urologist until 09/07 and will find out more then.

It is my understanding that this is a hereditary/genetic disorder and there is no cure and progression to kidney failure is quite high by the time you are 60 and I am 52.

I was just wondering if anyone else has this or knows someone who does and what info they may be willing to share. 

Thanks so very much. :)

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